Feeling better

I would like many of you to answer this. At what point did you feel better after your implant? One month? Two months? Longer?


14 Comments

Immediately

by crustyg - 2021-01-07 12:53:06

I gather I'm relatively unusual, but for me the restoration of A=>V synchrony, faster and less intense heart beats and better athletic performance was immediate.  PM in on Wed (under local only), out riding road bike on Sun and could feel the difference - it was wonderful.

Very little wound pain (most of my pain was during the procedure...).

No sense => no feeling!

Very lucky, and apparently not that common to be so lucky.

At least 3-4 months

by jds66 - 2021-01-07 13:09:43

Until I could get all the right settings and my body settled down, it took a solid 3-4 months before  all the weirdness calmed down, including my daily worry with my first pacer back in 2012. You can even go back to some of my posts back then, literally I was posting if there was a way to have a pacer removed. Some of the things I did to try to get them to remove it here were borderline insane, lets just say that good thing my body healed those leads into my heart real quick, because I was doing plenty of activity that I should not have so soon after my imnplant in 2012, hoping to make them take it out. Dumb, but lucky I made it through that trauma. 

My worst time was the first month, esp the first 2 weeks after, barely slept, many adjustments were needed. 

My second pacer, one month ago, a bit of a different story. I was great the first 10 days, then the wheels came off the cart, and i am doing some adjustments/testing now. 

So, I expect probably spring time is when I will have comfort again, just part of what the journey is for me, as long as I keep waking up, I dont care, this inconvienence is temporary to a longer term gain. 

How long?

by Gotrhythm - 2021-01-07 13:31:19

I knew I was better as soon as the anesthesia wore off. My cheeks were pinker, my eyes brighter, and I felt perky for the first time in a year or two.

That said, it still took time to regain my strength. At least a month or two. I also needed several tweaks to the programming to get the optimal results from my pacemaker, and that process took several years.

Of course, I didn't know then what I know now. Now, with the help of the Pacemaker Club I think I would do a better job of communicating about how I was feeling with the medicos, and I think it needn't take so long.

Wow

by Alli - 2021-01-07 17:00:39

How i would love to be robotic like that! My trouble is that i am too sensitive to pain. Maybe i will feel better in a few years or so. As it is now i hate getting out of bed. Hopefully i will get an infection so they will remove it.

How long

by AgentX86 - 2021-01-07 17:22:24

About three seconds. Seriously, before they wheeled me out of the cath lab.  I felt like a million bucks for weeks after, then settled down some to normal, which was a huge win.  I've been there since and have more energy that I can remember.

This depends mostly on why you have a PM and your condition before.  My problem was Aflutter, SSS, and asystoles.  SSS was fixed by the PM but that didn't make me feel bad anyway.  Asystoles are deadly but don't necessarily make one feel bad (until they feel nothing).  But Aflutter was the absolute pits.  It wasn't the PM that "fixed" it, rather the AV ablation done at the same time.  Oh, what a relief it is!

I'm a little different than Crusty.  The surgery put me in A/V dyssynchrony but that is a far better place than I was.  I, too, had only local anesthesia (shoulder and leg), which wore off quickly and had very liittle pain.  Maybe a 2/10.

Feeling better

by Aberdeen - 2021-01-08 14:50:30

I felt better immediately. I had bradycardia - bpm 36-40 and I was breathless climbing stairs inclines etc. As soon as I had the pacemaker my breathlessness disappeared.

My PM

by Alli - 2021-01-08 20:13:52

Wow i wish i could heal that quickly. I have venticular arrythmia, sorry about my poor spelling. I wasn't even told how long it would take me to heal i had to read about by internet. All that other stuff they told you all i was not told. He kept that to himself. I wonder why now my dr was so secretive?

Did you ask?

by AgentX86 - 2021-01-09 00:00:32

I've found that the more interest you show in your health/condition the more willing your doctors are to give details and the longer they'll spend with you.  Many patients don't want to know the gritty details and that seems to be doctor's default setting.  If one does  research, short of self diagnosing (doctors hate WebMD diagnosis), you'll get a lot more cooperation from them.  Knowing what questoins to ask is very important.  You can only ask intelligent questions if you know something about the subject.

Advice you didn't ask for

by Gotrhythm - 2021-01-09 18:36:37

Was your "robotic" comment aimed at me? I ask only because it immediately followed my answer to your post. I feel sure you didn't intend any insult.

About what the doctors tell you. I sympathize. I read the little pamplet they gave me back to front, front to back, over and over, thinking "Huh? Can this be all? Seriously? This is all they're going to tell me?"

I was also very frustrated because I quickly discovered that general, "fishing" questions brought only "everything is all right" answers.

Grrr! I knew I was all right. But I didn't know diddly about pacemakers!

Limiting communication, there was also a huge emotional disconnect. They seemed to think a pacemaker was no big deal, but having a hunk of metal in my chest regulating my heartbeat seemed like aVERY BIG DEAL to me.

I understand the medical people better now. Purely from a medical perspective a pacemaker isn't a big deal. Strangely enough, the patient can be completely ignorant and still do fine. 

And with the help of this group I have learned how to ask the questions that will get me the information I'm really looking for. Doctors really respect good, knowledgeable questions.

You didn't ask for my opinion, but I'm going to give it anyway. I believe that the mind and emotions can have powerful effects on the body. Hoping for a pacemaker infection is a really bad use of your imagination and willpower. It would not be pretty.

Start imagining what you really want. Then use your anger as a source of power to take the steps that will lead you to overcome your present situation and actually make things better for yourself.

When did I feel better?

by Julros - 2021-01-09 19:30:12

In terms of cardiac status, I felt better immediately, because my heart rate was 40 prior to implantation. However, I developed a large hematoma and pain that would not go away. I only saw nurse practicioners for follow up and they didn't seem concerned because my site wasn't red, so they assumed it wasn't infected. When I continued to complain about pain and swelling after 3 months, I was referred to my primary care, who was clueless and recommended medical marijuana. I did ask for and get a physical therapy referral, which is the one thing that did help. I finally saw the EP at 6 months, and by then, most, but not all of the pain and swelling was gone, he hypothesized that I may have had an atypical wound infection.  

Now a year and a half later, I have lost 40 pounds and run 3 times a week. 

My reply here

by Alli - 2021-01-12 17:33:03

All of you are really lucky you can exercise. I start out walking, then have to rest due to breathlessness. I thought PMs were suppose to fix that? I guess i will have to talk to my dr. I hate talking to him. He is from India and has an accent. I can't understand most of what he says. Haha maybe that is the way he wants it. I'll tell you what, this hospital i have been to all these years has changed. They use to call their patients up and see how they are doing. Not anymore. I wonder why. Oh well.

My reply

by AgentX86 - 2021-01-12 18:12:45

My cardiologiust is from India and my EP from Lebanon.  Both are among the nicest people you'll ever meet.  Not an ounce of arrogance between them even though one is nationally known.  Where people were born has little to do with their skills or attitude (perhaps even in the opposite direction as you're implying).

Edit:  OTOH, the thoracic surgeon I had was US born and a complete dick.  I didn't really care.  I wasn't looking for my best friend, just my best surgeon.

Agentx

by Alli - 2021-01-13 03:45:09

I wasn't looking for a best friend either.  I have plenty of those. I wasn't implying what you thought i was. I only meant i couldn't understand my drs statements due to his accent. I could care less where he was born. And most US doctors are not the way you describe. I've had and have intelligent drs throughout my life. Just maybe not the really recent ones.

For Gotrhythm

by Alli - 2021-01-14 11:26:29

Sorry it took me so long to reply. I just wanted to say no that robotic statement was not directed at you.

You know you're wired when...

You have an excuse for being a couch potato.

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