I just got my Medtronic implanted last week and I'm adjusting to this new cyborg feeling. I'm 31 and experienced Sudden Cardiac Death (SCD) while sleeping on the beach with my partner. I ended up having open-heart surgery for a myocardial bridge unroofing, but my EP was still worried that I could be at risk of another SCD episode....after a long failed battle with insurance, who denied the dr. recommended subcutaneous ICD, I now have the transvenous ICD/PM. Its been helpful to read folks stories here, though I wish I found this before I got the procedure! I would have asked my dr. some different questions...and I would have advocated more for the implant to be in the muscle rather than on the surface. I did have a long conversation with my dr. about it as an option, but he ultimately discouraged me, saying the healing process is harder and each battery replacement is harder....but I'm super boney, especially in my chest, and the ICD/PM is very obvious, which is hard to be okay with. Before all this, I was very active, and my life includes a lot of outdoorsy things, like multiday backpacking trips, surfing, skiing, etc.....I'm super anxious about whether I'll be able to do these things again, especially with how much it sticks out. Looking forward to some support and advice about this from you all....
I'm also finding that I'm terrified of it moving or migrating. I see a number of posts about this and it totally freaks me out. I did tell my dr. that I backpack a lot, and for this reason, he placed it further to the left, right near the edge of my armpit...and I'm totally afraid it's going to slip into my armpit or down to my boob (which I have read happening to others!). Yikes. People always say this anxiety is a small price to pay for the freedom of anxiety of another SCD episode...but its still anxiety.
Hearing positive stories from you all is helpful! And I'm very interested in connecting especially with other younger folks, particularly other women and outdoorsy types, who have adjusted to this.
Thanks for reading & sharing your stories :)