sarcoidosis diagnosis --> anxiety
I had an MRI two days ago and yesterday the EP called to say there were signs of sarcoidosis (I guess I should say "sarcoidisis or other infiltration," because my understanding is that sarcoidisis diagnoses are hard to make definitively). So my PM plans have become ICD plans, and I have been referred to a specialist at another hospital for follow-up, possible PET, etc.
Edited for brevity:
How do others with this diagnosis deal emotionally and intellectually with the short-term complications and potentially scary long-term prognosis of this condition?