Hello I'm Steve 63 I had my second pacemaker fitted in July this year they removed my old one from my left side as it had moved out of position and was causing me pain they implanted a new one in on the right side but I had a bad feeling about it as it seemed to be touching my collarbone and I'm in pain across my right shoulder my collarbone and still in pain were they took my old one out on the left I went back for a checkup in October they told me to just take pain killers but they don't help much I just think this is it now I will be in pain for the rest of my life is this a normal side effect does anyone know thanks.


Pain for the rest of our lives with a pacemaker ?

by Gemita - 2020-12-11 08:47:14


I am so sorry to read about your difficulties.  No to be in pain for the rest of our lives because of a pacemaker implant is not to be expected at all.  We may feel our pacemaker from time to time;  I still do after almost 2+ years and I still get some discomfort in my left shoulder, collarbone, left armpit region but this cannot be called pain, requiring pain control.   What would I do in your situation?

I would in the first instance go back to speak to your doctors again and ask for further investigations to check the position of your device and leads to see whether any movement has occurred, and to also check whether there might have been any trauma to nerves and blood vessels in the area which can happen and may take several months, or longer to heal.  At least they need to be aware of your level of pain after 4 months, especially if it requires heavy pain control.  

Any surgical procedure carries some risk and it could be that there has been a complication that needs addressing.  However, if your present team of doctors are unwilling to even try to help you, then I would strongly consider getting a second opinion.  

On a scale of 1-10, how high is your pain level?  Is it constant, or intermittent?  What is the pain like, sharp or dull?  I am assuming your pacemaker check was normal and that the device area looks completely normal, with no swelling, redness.  Have you developed any noticeable new veins around the pacemaker ?

Please don't suffer in silence.  I would go back and ask more questions, particularly whether better pain relief can be given.  To give appropriate pain relief, they really need to know what is causing your pain though.  For example, you could ask whether this is likely to be nerve pain, or caused by inflammation, damage to blood vessels, or trauma to bone/muscle.  All of these possibilities can take a long time to resolve but with effective symptom relief meds you can be helped until this settles down.  I hope for the very best.


by AgentX86 - 2020-12-11 13:15:49

Pain after five months and they're telling you to take an aspirin and don't call me in the morning?  Fire them and find doctors who give a rat's rear end. That's just ridiculous.


by Stephen 1957 - 2020-12-12 10:13:13

Thanks for advice gemita and agent x86

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