DDDR on temporary pacemaker sheet.

Bradycardia with heart block pacemaker fitted 10/11/2020.

No prior issue of being able to raise heart rate.

Evening all

I noticed on my pacemaker temp card it states DDD(R)

A quick search on this forum says the R stands for rate response and that it is required in people who struggle to raise their heart rate in response to increased requirements.

Can you think why I would have been set with this on? Is it an initial setting to err on the side of safety until they have checked if I have that issue? 

Thanks John

 


6 Comments

Ask for a summary sheet of your settings

by Gemita - 2020-11-20 16:40:46

John, very briefly, although you have a dual chamber pacemaker with a rate response capability, is rate response actually turned on?  Ask for a copy of essential settings or eventually get complete copy of ALL your settings and then you will know what your settings are.

My pacemaker can also operate in DDDR mode.  My RR is clearly switched on although I usually have no difficulty raising my heart rate.  However sometimes I need to get my heart rate up quickly and without RR turned on, I would be held back.

rate response

by Tracey_E - 2020-11-20 16:49:40

I mentioned this in one of your other posts. It's not a safety issue. People with known sinus issues need it on. AV block typically does not need it so some doctors turn it off while others leave it on just in case. It will only raise your rate on exertion if the heart doesn't do it on its own. Sometimes we feel better with it off but most don't feel a difference, it's just there if you need it. I am one of the few with av block who has it on, uses it, and likes it that way. It gets my rate up faster when I work out that it would go on my own.

You can ask them to turn it off. However before doing that, I would ask at your first check if you are using it. If you are, and you feel good on exertion, then I'd leave it alone. 

The pacer is a gas pedal. It can only make the heart go faster. It can't prevent the heart from going fast on its own. When that happens,it just watches. 

Rate response

by AgentX86 - 2020-11-20 18:32:36

To amplify what Tracy_E said; if you feel good and can do what makes you happy, leave well enough alone.  Changing anything can only make it  worse.

Rate response

by quikjraw - 2020-11-21 12:39:00

Another question to have confirmed at my appointment whether that is something they have set on the pacemaker - I would hazard a guess that it is turned on as they could have typed any pacemaker mode on my personal pacemaker slip but as you say Gemita there is only one way of finding out.

 

 

 

 

Factory set

by PacedNRunning - 2020-11-23 07:12:56

They all come out of the box with this setting on.  I have heart block and they turned mine on. Awful! Felt like I was 90 years old and didn't need help getting my HR up. My HR Is slow to increase because I do have bradycardia and athletic but I don't need to go to 50-100 in 2 seconds. Ha! What my own heart does is just fine. :) Ask at your next appt if you need it and if not, have it turned off. Mine is off.

Factory set

by quikjraw - 2020-11-23 10:28:14

Yes if it is turned on then I will ask more about why they left it on. I assume they will have a clever way of knowing if I am using it but I would not know what a normal rate of change of heart rate is during exercise.

I know I take several minutes before my heart rate is at maximum heart rate when running but I had always assumed that there is a very good reason for this so never questioned it.

 

 

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The pacer systems are really very reliable. The main problem is the incompetent programming of them. If yours is working well for you, get on with life and enjoy it. You probably are more at risk of problems with a valve job than the pacer.