Question again.

I'm sorry about continually asking questions since my implant  5 days ago.

This might just be because swelling is going down but I'm pretty sure there is a rather hard line under my strips that close the incision that I didn't notice before. It is a little more sore too.

I was seen yesterday by the device nurse for the device moving. He thought the incision "looked good," although you can't actually see it. I don't think this line was there then, but I can't say for certain. 

This morning I noted when I laid on side facing away from incision, the incision area was more sore.  I don't know if it is red, etc., as I can't see it.

I know I can't be seen every day or even call. Is this anything I should pursue (because infection is critical) ior just watch another day? I think I would feel better with an x-ray that documents where device and leads are, but they haven't seen the need for one (except at implantation, of course.)

Thank you again!


7 Comments

Go back and persuade them to carry out imaging of the area

by Gemita - 2020-11-17 15:36:12

I would persist.  You are clearly not reassured and nor would I be.  I would push for imaging of the device/leads position.  They can compare it with the original imaging to confirm the extent of movement.  It may not be affecting pacing yet, but it could well do so at any time in the future and a proper assessment needs to be made now and they cannot do this without imaging.

If your current team won't help, seek another opinion.  You may have to live with this discomfort for several years and it may be easier to put it right earlier rather than later.  What have you got to lose by asking again?  Only an unhelpful medical team!!

Thank you Gemita!

by Pharnowa - 2020-11-17 15:47:13

I appreciate this help! I will call them.

Five days

by AgentX86 - 2020-11-17 17:34:09

For the first month, perhaps more, you're going to feel all sorts of strange sensations. Particularly as the swelling goes down things feel differently. Laying on one's side (either) is going to move things around some. You're acutely conscious of something strange invading your body and your mind will play all sorts of tricks on you.

Since you saw the nurse yesterday and all was good, I wouldn't worry about it a lot. Of course from 1000mi, I don't know what you're feeling but from your description it's probably the edge of your PM or perhaps a lead.. Neither are anything to worry about.

If you think there really is something wrong, for sure get it looked at. However, the other side of the coin has a wolf on it. If you're constantly going back for every new little sensation, you may be labeled a hypochondriac. When something important does go wrong, they may pat you on your head to humor you, then send you on your way. That may not be right but it is human behavior. Sometimes we forget but they put pants on too. It may be a fine line to walk but it's something everyone should understand.

My wandering PM..

by Pharnowa - 2020-11-17 23:28:03

The PM moved into my armpit at least 2 1/2 inches from the incision. It may have moved more last night. I think it's pulling the leads with it. That's logical as they are strached. It jabs me when I move my arm. That's my mind playing tricks on me?

The nurse yesterday said it was still working but if it continued to move, it would need to be repositioned. He felt it and agreed it moved. He believed it had rested on a nerve and that's why it hurt more than usual. All good?  With covid increasing the prospect of returning to the hospital is not inviting. I'm not sure how you adjust to a device jabbing your armpit.

The incision hurts for the first time. Pain can be diagnostically signiicant. I don't think reporting and inquiring is playing wolf. My experience is they appreciate my bringing potential problems to their attention. This is my second call and they told me to call with changes. 

I am asking for an x-ray so we know where the device and leads are more accurately. Maybe documentation of the device ramming the cartledge on the edge of my armpit will ascertain that counseling won't help here.

I'm not concerned about a provider patting me on the head. He/she would then be called an ex-provider.

I am acutely aware these are small problems on the overall scheme of what people face here. But I believe it's appropriate, and even my responsibility, to report them as my effort in my care. 

 

 

 

New information

by AgentX86 - 2020-11-17 23:47:33

Of course you bring in new information not shared before.  If you're so sure it's not good, go back now but beware of the wolf.  It's real.

Not new. It was the post prior to seeing the device nurse.

by Pharnowa - 2020-11-18 00:01:54

I posted an update after.

I was going to wait but was encouraged to be seen by two posters.

 

No harm was meant I am sure

by Gemita - 2020-11-18 05:11:36

Pharnowa,

We are all trying to help each other in whatever way we can.  When I first read your new post I thought things might be gettng better but I can sense that you are not entirely reassured and nor would I be with a clear positional movement of your device in so few days.   

As another Pacemaker Club member I think mentioned, movement of your device can result in the leads being pulled and possibly breaking away from the device.  There should be a large suture (stitch) holding the device in place apparently but if this has come away so early, your device may be moving around.  That is why they need to X-ray the area and if it is clearly "floating" shall we say, then they will need to go back in and anchor it down.  

Of course no one wants further intervention so early and I would not normally recommend it if I felt it wasn't needed.  But from your clear information about a 2 and a half inch movement away from the incision, I think this is an indication that, in the very least, you need that X-ray.  Good luck

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