Can a device clinic wipe out a PM’s data?
- I have a Medtronic Azure that was implanted 2 months ago. Three weeks later I was called to EP's Device Clinic because a lead had failed. My EP said it was my fault and he was 100% certain it was my fault because I volunteered that I quit wearing the sling two weeks after surgery. Did this because the pacemaker juts badly into my underarm and that with the sling caused a bad rash (I have atopic dermatitis) and not being able to move my arm (a very tight sling contraption) had caused a buildup of sludge that was crusting and itching and getting infected. I had called EPs office but receptionist said EP never sees anyone until six weeks post implantation. I know that the day after my PM implantation the Medtronic guy came with his Interrogation cart to my hospital bedside. He took a long time and said he couldn't get settings right. He left and I was discharged. Then the day I set up my CareLink remote monitor- EPs office called said a lead looked to be dislodged. I was so new to all this and stupid and did not ask when atrial lead quit sensing. Told device nurse I had quit wearing sling and why. But EP blew up at me that he is 100% sure my discarding of sling is why lead failed and turned that info into insurance and it's on my medical chart because EP put it there. Husband (by-the-way, a theoretical physics professor) was with me in EPs office to discuss revision surgery - which I had 5 weeks ago. Device clinic gave me data from when PM was interrogated - but said they had wiped the data from the Medtronic guy's bedside interrogation -until that new visit- which I firmly think would show the lead had micro-dislodged that first 24 hours after surgery. Device clinic nurses tell me they wiped that original data out of my PM for the first three weeks after surgery. Can they really have done this? Medtronic said PM keeps info for 14 months. This is my way to prove crazy EP wrong. I have appointment with new EP in another state for one month from now. But I want to know now! If data is erased, I do have my Fitbit data for that entire time period up to now that shows PM never recorded a HB above 43 for that whole first three weeks after surgery. Seems to me like lead -passive tines- was never hooked on to heart muscle. This EP is insane and wrote me I can no longer see him or anyone in his Cardio group - they will not see me in ER because I raised my voice at him in Device Clinic when he refused to answer whether he had given me IV antibiotics during revision surgery or tell me if he had used an antibiotic pouch when he put generator back in after lead revision procedure. I blame COVID for letting him do it when hub and I knew he was shady by then. Hub has leukemia-trying to protect him my having surgery with local -- very much in demand -- EP in small town hospital serving larger counties. I want this data. Could they really have wiped it out in Device Clinic - when I came in after call from them because of device alert? This would assure Doctor could never be blamed and he could blame me to keep his lead failure rate down - in his own mind. Plus - now I'm butchered by two ugly scars an inch on top of each other and PM still has huge jut in armpit. Husband totally supports new EP in new state - as he think this former EP has huge problems communicating and is shady. EP told me would not answer my questions until I went to Med School and got my MD. Well - I have three advanced degrees (had not told him this -as am retired ). One degree is a law degree with Bar Membership. He knew hub was professor of physics at University and still he pumped his fist in my face and said for me to quit trying to play Doctor on Google - that HE IS THE DOCTOR. He apparently disrespects my hub, too - and hub teaches Quantum Mechanics and Special Relativity with many publications in the very best physics journals. EP has never published anything that I can find and I was a BonaFide University Science Reference Librarian. (Had not told him this.) Now I have received his doctor's notes from my office visit before revision w/ husband with me every minute when Dr. put his fist in my face and shook it. But Dr. notes of this visit describe an in-depth physical exam that never took place. Not a bit of it. Husband will sign affidavit stating this. It's too crazy to be real. I think he may be doing big insurance fraud and leave a lead dangling and then get to do a revision surgery for minimum $6,000 from our good insurance. He only gets $400.00 for a Medicaid patient's surgery. I'm not worried about my good BC/BS not paying as I have my Fitbit evidence + my husband knowing I had bad rash underarm and had tried to call his office for appt. How crazy is this story? I am a 67 yr. old senior citizen who has never even had a speeding ticket. Very careful person. What is his problem? Could his device clinic have really wiped out that data that would clearly show when device failed? Please help. This is driving me crazy. Plus I hate the set-up of Medtronic or an EP's device clinic having my personal PM data.This is driving me nuts. Thanks you for any info. Very, very distressed.