Remote transmission frequency

How often are you scheduled to send remote transmissions?

My EP suggests that I send a transmission every 90 days.

Do you send transmissions more frequently than scheduled?

 

 


9 Comments

Remote monitoring

by Gemita - 2020-10-14 20:49:05

Hello Ar_Vin,

I guess frequency of transmission will depend very much on the condition of the patient and the type of device implanted.  

When I had my Reveal Linq loop implant, transmissions were nightly automatically downloaded to my clinic or whenever I felt particularly unwell I was required to send an immediate transmission.

Now that I have a dual chamber pacemaker and my rhythm disturbances are known and better controlled, I am only required to attend hospital annually for pacemaker monitoring and checks, although I see my EP every 3-6 months and I am still able to transmit data remotely through Medtronic My Care Link whenever I need to (which was set up again in July this year).  

I am in the U.K. 

What's the frequency?

by AgentX86 - 2020-10-14 21:27:10

I'm scheduled to send a transmission twice a year and in-office twice a year.  If there is some reason that I need it, I can send one or go into the device clinic at any time (within a few days).  I do not have an automated schedule at all.

My PM is a CRT with no atrial lead but other than permanent flutter, I'm pretty stable.  I had PVC problems at first but I think that's gone away.  I had a couple the other night but it was only a couple. There really is no reason to constantly check in.

 

transmissions

by Tracey_E - 2020-10-14 21:49:45

Mine automatically sends once a quarter. I've initiated downloads maybe a handful of times in the 6 years I've had it. Once when I was headed to the ER and knew they'd be calling in the rep otherwise, and before and after a breast biopsy that was close to my leads. I think that's it. It's all wrapped up in a towel under my bed, haven't pulled it out in more than a year. 

Remote transmissions

by Aberdeen - 2020-10-15 09:42:02

I have to send a transmission monthly. My pacemaker (CRT) was implanted in May so it is fairly new.

Does anyone else have to send one so often?

"Standard of care"

by ar_vin - 2020-10-15 12:12:02

I was given to understand that quarterly device interrogation is the "standard of care" (at least in the US) for all PM patients; it could be more frequent if needed. The interrogation could of course be either in person or remote. Insurance carriers provide coverage for the quarterly transmissions.

Thanks to all who responded and I request others to respond as well; it helps to understand practices around the world.

 

standard of care

by Gemita - 2020-10-15 12:54:29

Hello again ar_vin,

If it helps, my husband who has a single lead pacemaker, who is 82 with multiple health problems, and who attends a different hospital in the UK, is also only required to attend annually for a pacemaker check and download of data.  

From what I have seen here on this site, many patients from the UK are getting annual checks only (and I regret to say even fewer checks during COVID-19 due to cancellations).  

When my husband's pacemaker team recently tried to cancel his arranged appointment due to COVID-19, they reassured me that there was really very little that could go wrong with a two year old pacemaker and that it was safer not to attend hospital but I managed to get him seen because of an 'event' which needed assessment.

Unless a patient has a condition that needs close monitoring, annual checking in the UK is quite common I believe, but as you say it will be interesting to hear from other folks, in different countries so that we may build up an accurate picture of the standard of care offered elsewhere.  

By the way I think quarterly interrogation remotely or in person is an excellent standard of care. 

Annual check

by AgentX86 - 2020-10-15 13:24:58

As noted above, I have a pacemaker check once a quarter, two in person and two remotely unless otherwise initiated by me.  I also have an in-office appointment with my EP once a year and quarterly with my cardiologist. It depends on your health and how closely they think you need to be followed.

Remote Monitoring Frequency

by Marybird - 2020-10-15 14:19:46

When I asked I was informed that my pacemaker remote monitoring was carried out quarterly, and I guessed that was pretty much the norm throughout the US, perhaps in Europe as well, at least for devices with wireless transmissions to home monitors which then transmit reports to a clinic or monitoring  company. The frequency would vary, of course, depending on a patient's own conditions, age of the pacemaker, or with transmissions initiated manually by the patient.

So I was told my pacemaker is monitored quarterly, but I have no idea when these occur, having never received any schedule or feedback from transmissions, I think the assumption is no news is good news, which I'm fine with as my impression is that for the most part, all is well here. Though there is the capability for any remote wireless monitor to let the patient send a transmission manually, I'd never do it without specific instructions by my doctor to do so. If there is some reason for them to do so, they will be expecting that manual transmission,,otherwise just randomly sent manual transmissions will only cause confusion, I'd think. 

At this point I have an annual appointment with my EP. My regular cardiologist (in the same practice) sort of bowed out from regular visits since the EPs also manage my blood pressure and I have no cardic "plumbing" issues, though he stays in the picture as backup, I guess you'd say. 

So it's quarterly monitoring for me, though I guess the pacemaker/monitor sends alerts outside the routine monitoring events for tachycardia, other events that fall outside preset parameters. I recently got a phone call from the cardiologist's ( regular, not the EP) office informing me of a pacemaker monitor alert for "excessive mode switching"  and instructions from this doc to increase the dosage of metoprolol I take. I don't know if this alert came from a routine monitoring report or an event alert, but I guess it doesn't matter. I think that increase in meds has helped with the tachycardia I was experiencing. 

I guess a few phone calls for general information to the manufacturer's monitoring site(  in this case Abbott, MerlinPCN.net. whatever....) and/or to the monitoring company recently signed on to by my cardiologists practice might enlighten me ( or anyone, for that matter) as to the details of the remote monitoring. They won't give out any medical information, or even pacemaker related information (say, about settings, battery life, etc) as that must come from your doctor or clinic, but they can give out general information.

remote transmission

by islandgirl - 2020-10-15 16:52:56

Weekly was my standard, but now daily.  I have an ICD with numerous things going on.....We are all different, so go by what your EP advises.

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