Praying for relief

Hi everyone, my head and heart and body have been really awful to me these past few days, and I am just praying that I will wake up and it be June 5th so I can schedule the pacemaker implant. I am about to be driven crazy by the medications. Midodrine and Toprol XL. I over-did it with trying to be a good mom this past Memorial Day weekend and doing stuff with my 2 kiddos. I collapsed on Sunday at the park. Monday I woke up and cooked a big breakfast but I felt so bad all I could do was sleep on and off all day (took multiple naps in between the 4-hour Midodrines). Yesterday I had to go back to work but I got home and was back in bed by 6:15pm, which means I got a fitful 12 hours of sleep last night, but I got up this morning and feel just awful. It took me about 45 minutes of pressure in my head and chest and nausea this morning after I woke up before I could get moving and take a shower and get ready and get to school and then work. Just a reminder I am in my twenties and I have bad NCS/VVS with asystole. Also my pulse and BP get extremely low at night, so I feel crappy every morning. Just needed to vent today to y'all because I feel alone and awful and I can't wait til next Tuesday when I can hopefully get this over with soon. I am psyched up for the pacemaker and can't wait to hopefully feel normal again. My husband and I are now talking positively about it. Thanks y'all for any supportive words.

4 Comments

Hang in there

by randrews - 2007-05-30 01:05:22

You are going through some tough times for sure. But you obviously have strength to keep doing what needs to be done. I 've had my pm for going on 3 months and every week has been good progress. It does take some time and rest, lots of it. I have an 8 and 11 year old and I don't think my pm has changed anything I do with them(except no hitting dad in the chest).
You will do great. Please keep us updated on how you are doing. And you are definatly not alone.
Rusty

Feel Better!

by ela-girl - 2007-05-30 01:05:36

Hang in their, carismendez! It will get better! I am 29 and have NCS and heart block and almost died until I got my pacer. I am still on the Toprol XL 50 mg a day which isn't a big deal for me now with the pacer. I used to sleep ALL the time for 11 years. Now with the pacer, I really feel like I have a new life completely! My husband is the one who needs naps! If I do take one, it is only for an hour then I can get right back up again--it's great.

I don't have kids of my own, but I am a teacher. Make sure you take some time for yourself. As my husband says, "You don't have to always be superhuman!"

So, you don't get your pacer on June 5th but get to schedule your surgery? Keep us up to date!

ela-girl

You will do just fine!

by tcrabtree85 - 2007-05-31 02:05:31

When exactly do you find out when your surgery is. Please keep us updated. You are in my thoughts and prayers! Take care of yourself and get a lot of rest.

Tammy

New PM

by TOGUY - 2007-05-31 11:05:22

Good luck on the 5th as soon as you are scheduled and have the implant your quality of life will so improve.I am five weeks with my new PM and am feeling so much better. Please keep us up to date on your progress, things will only get better.
Gary .

You know you're wired when...

You have a dymo-powered bike.

Member Quotes

I have a well tuned pacer. I hardly know I have it. I am 76 year old, hike and camp alone in the desert. I have more energy than I have had in a long time. The only problem is my wife wants to have a knob installed so she can turn the pacer down.