POTS & Echo Update

Hello everyone!

So the docs are leaning more and more towards a diagnosis of POTS. I have the Tilt Table Test on the 27th so that should tell us what we need to know. In doing further research I have about 85% of the symptoms listed.

Here is the link:  https://my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots

My recent echo was nothing short of flawless. Everything looked good and is functioning great. My EF was between 60-65%. Normal sized atrium and ventricles. No enlargements or thickening of any walls. Valves were pumping and filling normally so no plumbing issues so to speak. I guess we have to wait until after the 27th to see what happens.

My Zio Patch has also been reviewed daily. They haven't seen anything concerning with regards to any rhythm changes. A few tachy episodes, all sinus rhythm but nothing that would warrant much concern. I will keep everyone posted. I pray that if it is POTS it can be managed and treated effectively. Fingers crossed! Amen

Alejandro


4 Comments

POTS

by Tracey_E - 2020-05-16 11:34:04

Sorry to hear you may have POTS, but it's good to get answers so you know what you are dealing with. POTS is a tricky bugger to diagnose. Everyone I know who has been diagnosed with it (3?) took years to figure it out. 

Hi Tracey!

by arentas80 - 2020-05-16 14:09:34

Yes this will definitely suck if I have it. I just want to know what's wrong with me already. It's so strange that I was totally fine November 7, 2019 and starting the very next day my life has changed forever. It's like that person who doesn't know they have cancer. Then suddenly they find out, become super sick and then pass. I was totally fine and then literally the next week my life has never been the same. It's been rough to say the least. As long as I know what I'm dealing with I can adjust accordingly. It's the not knowing that's driving me nuts. Anyhow thanks for responding. Appreciate it! Have a blessed day!

Alejandro 

Hopefully getting closer to a diagnosis

by Gemita - 2020-05-16 14:50:00

Hi Alejandro,

Well your doctors are certainly trying to help you and it is reassuring that there is no abnormality on your echocardiogram.

Hopefully your autonomic tests for POTS will give your doctors more information so that if you have the condition they can find the best treatment for you.  You already have your pacemaker so you have a head start I would say.  This will be a journey Alejandro but a journey well worth making.  I hope at the end of it you will find the diagnosis you seek and the solution for it. 

I wish you well my friend

 

Gemita :-)

by arentas80 - 2020-05-17 19:37:58

Gemita- Thank you as always for your wonderful comments! They truly do mean the world to me. I'll be sure to keep everyone posted and I pray for the best. Thank you again!

Alejandro 

:-)

You know you're wired when...

You have a $50,000 chest.

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In fact after the final "tweaks" of my pacemaker programming at the one year check up it is working so well that I forget I have it.