Generator Change

Hi All,

My last 3 interrogations noted the battery longevety 2 months (<1-4 months).  My cardiologist office alerted me mid February that I  had 2 months to go.  The report then said the same 2 months....etc.  

I was heading in for a generator change when COVID-19 hit.  At this point things have been postponed indefinitely.  I was wondering for my own peace of mind what are the numbers to be looking on the report to get a clearer picture of timing.

Any information is welcomed. 

Jo

 

Thanks for the responses.  I have recontacted the cardiologist who is doing the replacement again today and sent the report done last week.  I am maintaining a 'squeeky wheel' posture in this, but the vagueness of what they are looking for,  to make it out of 'elective surgery' status is uncomfortable to say the least.

 


14 Comments

Hi

by Bionic Beat - 2020-04-23 16:25:19

If I were you, I'd be calling the Pacemaker Clinic or whomever you see about your pacer.

I can tell you that I had an appointment for a check but they called to rebook for August.

That is not an EOL appointment, just for a check.  

Perhaps your Electrophysiologist can at least call you and speak with you about this.

If not, perhaps your regular cardiologist can shed some light or call someone to expedite this for you.

I do not think they just stop, dont be too worried about it as I am sure people have gone past the battery time and it must have a backup that kicks in for a period of time.  Just my 2 cents worth.

Stay well and best of luck with your new battery.

 

Bionic Beat

You need to call them ASAP

by crustyg - 2020-04-23 17:27:42

If you were heading in for a generator change then you still need a generator change - there is no hidden secondary battery backup.  When the battery on your PM reaches a low enough voltage then, if it's been designed well enough, it might switch into an emergency 'keep you alive mode' but that may not be possible, and you won't enjoy the experience.

Once you cut through all the alarmist reporting, most hospitals recognise that there are some conditions that simply can't be postponed - acute cardiac insufficiency, acute abdomen (e.g. appendix inflammation, bowel infarction), PM box replacements etc. due to expiring batteries.

Keep calling your EP team and telling them that this is not an optional PM interrogation, and that (if you are PM dependent) then you will *HAVE* to have this operation done as scheduled.  Eventually you will get to someone who understands what you're talking about and gets it done.

Best wishes.

eol vs eri

by Tracey_E - 2020-04-23 20:30:47

I wonder if they are differentiating between elective replacement (eri) and end of service modes (eol). Some doctors/insurance always wait until end of service but most of us have it done while it's still in elective replacement. If it was in eri and now they're wating for eol then you are safe, but push to have it done now anyway. As crusty said, if you needed it before, you need it now. Eol will keep us safe but if we pace a lot it does not feel good because it's working at reduced function. I'm on my 5th and they've never let me get to reduced function. 

Generator Change

by Jocre8 - 2020-04-23 21:51:17

I sent them the interroigation report  from last week this morning asking what they are looking for, the response just now came in: Thank you for sending the ICD interrogation. The value we look at is the battery voltage, near the top of the page, but this needs to be taken with a grain of salt. As you see there is an estimated battery longevity RANGE provided. Once the device reaches the voltage number, it doesn't necessarily mean that it has reached RRT just yet. There are certain criteria that need to be met before the device will 'declare' RRT; once this occurs the device will start to beep/tone once per day at the same time each day. It sounds like a British police vehicle. If you hear this tone, kindly give us or your local MD a call and we can evaluate the device, turn off the tones and get you scheduled for the procedure.

Can anyone tell me when in the process (how close to failure) this beeping thing might happen?  Jo

Hi again

by Bionic Beat - 2020-04-23 22:43:22

Just checking up on you!

That answer should make you feel better.

Sounds like you'll be scheduled in as soon as possible when it beeps. 

Good to know that it gives you an 'alert' but hope its not during your sleeping hours.  

Best Wishes,

 

Bionic Beat

 

 

Generator Change

by Jocre8 - 2020-04-24 01:04:04

Thanks so much for the support!  Best and be healthy!

Jo

Surgery yesterday 4/23/2020

by Pjmage@att.net - 2020-04-24 09:32:50

Just had PM replaced yesterday after going into Batterey saving mode since Easter. Uncomfortable feeling as it limits your heart rate to 65, no higher and feelings of a lot of palpitations. COVOID precautions well observed at the hospital, I felt comfortable and safe. Left night of surgery and home now.., and sore. Lol

Generator Change

by Jocre8 - 2020-04-24 12:55:48

Pjmage,  (and others) thanks for the info.  My RRT is 2.77 and it was 2.78 on the 16th.  I am going to call Medtronics today to see if they have an estimate of timing on this.  I would rather not go into that battery saving mode.  Since this is to be done at Stanford, I have no doubts about their COVID precautions.  We are in the surge this week. Hopefully that will get better from here on out;  we are statewide still under shelter-in-place.  

Good

by Violet West - 2020-04-24 14:30:38

@ Jocre8 

stay safe

Thanks

by Jocre8 - 2020-04-24 15:33:06

@ Violet West,  thank you so much.  Stay safe as well.

Jocre8

by Pjmage@att.net - 2020-04-24 18:50:40

Good luck with your generator change, stay healthy. Will this be your first generator change?

Subclavian blockage

by Pjmage@att.net - 2020-04-24 19:02:20

Has any ever heard of this? Yesterday, they wanted to replace my lead in addition to generator change but could not do lead replacement because of the total blockage. So, he hooked up old lead to new generator and the lead still works ( thank God) but it's old, as it was 20 years ago when I first got my PM. I'm having funky arrthymias and the old lead is not sufficient in giving them the information they need to figure what's going on. I'm okay... I'm waiting to talk with Dr about my options. Weird, huh?

Subclavian blockage

by Pjmage@att.net - 2020-04-24 19:02:22

Has any ever heard of this? Yesterday, they wanted to replace my lead in addition to generator change but could not do lead replacement because of the total blockage. So, he hooked up old lead to new generator and the lead still works ( thank God) but it's old, as it was 20 years ago when I first got my PM. I'm having funky arrthymias and the old lead is not sufficient in giving them the information they need to figure what's going on. I'm okay... I'm waiting to talk with Dr about my options. Weird, huh?

Generator Change

by Jocre8 - 2020-04-24 19:12:49

First, Pmage wish I had wisdom on your question but I am a newbie. 

Back to the Gen change:  I just learned from Medtronic that my pacer does not beep.    GIven the numbers the tech thinks about 2 weeks before ERI.  Since I am pacing all the time to bypass a LBBB, he says once it hits ERI that will stop happening;  although I will still have time to change it.

Jo

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