Heart Rhythm Medication - Exhaustion
I was diagnosed with sarcoidosis last May. It is in my lungs and lymph nodes and migrated into my heart which caused the ventricular tachycardia events which led to my pacemaker and since then an ablation (little back story there). While recent PET scans have shown it subsiding in my heart, it is still present in lung area (being treated with immunosuppressive steroids).
To my question...........I have always been quite the active person/dad. I am thin, always moving, hiking at Yosemite, playing on adult sports leagues, tirelessly practicing sports with my children. My current situation has been the case for about 6-months but I just came aware of this site to converse with others, like me.
My current situation is that I am so exhausted, I actually crawl up stairs at time. If I walk up a flight of stairs, I seriously have to stop for 3-minutes at the top as I am bent over huffing like I just ran the marathon. Little everyday things I never realized that take energy are now huge things...like drying off after a shower, pushing a cart at the grocery store, etc.
So hiking and sports are on hold as I am fatigued walking with a backpack into work and I generally have no energy.
To combat the arrythmias and aid my heart I am on a few heart medications and I wanted to see if any others here have some of the same symptoms that I have....either taking the below medications or other heart medications.
I have been told they will start to ween me off amiodarone and mexiletine in May but if medication is not the issue, I guess the sarcoidosis is still the sucker holding me down.
Thanks for reading.