Heart Block - 100% Pacemaker Dependant
Sorry for the long back story but I am quite concerned, scared, upset, etc.
I had my pacemaker/ICD put in June, 2019 due to the ventricular tachycardia episodes I had due to a virus called sarcoidosis that somehow got into my lungs and heart. It damaged my heart and the result was ventricular tachycardia.
The pacemaker has been pacing me at the low end to 60 bpm and at the high end around 175bpm. All this time since June my heart was beating on its own power, but a tad slower than 60 so the pacing helped it go up to 60bpm.
At the end of January, 2020 I had an ablation to stop the arrythmias......and so far so good. HOWEVER......I just found out yesterday that there was a complication that I read happens 1-20% in ablation surgeries where the electrical conductivity in the heart is interupted or cut off creating something called AV Heart Block!
Yesterday they shut off my pacemaker as they have in the past to see how my heart is pumping on its own and in the past it would go down a tad....yesterday I slumped over nearly passing out immediately after they shut the device off, where my bpm dipped under 5 he said.
Sorry for the long set up but wantd to give you the details. So now, I am 100% DEPENDANT on the pacemaker to basically keep me alive. I am so scared. Everything breaks. I have always liked the device as a nice insurance policy in case my heart got too fast........not it's basically the opposite........if it breaks down, there is nothing to keep my heart pumping....even if the ICD shocks me, my thinking is if there is no electrical system to have the heart pump on it own, what is it shocking my heart to do (if the pacing part of the device is broken).
OK, so I'm all over the place. Afraid this device or the leads will falter and I pass out immediately with no shock to keep me alive. I was so happy to think this was a back up....now its the only way my heart is pumping.
Any one else with heart block, can walk me off the ledge, etc. Been a tough 24 hours.