Good news --well, sorta. At least there is movement.
At my insistence I was seen at Duke today. Happily I saw an NP who listened, and was willing to explain things. According to her, I emphatically do not have PMT. They seem to believe PMT is "impossible" as my pacemaker is programmed now.
What I do have, maybe, is Pacemaker Syndrome. It seems my heart just doesn't like to be paced in the ventricle. The NP deliberately paced the ventricle to see if I would react. My involuntary AIIIIIIE! conviced her that I did.
If I do have Pacemaker Syndrome it would explain all the symptoms I'm having. Apparently my symptoms are classic Pacemaker Syndrome.
There's a story about how I got this far. It's something newbies might need to hear about the importance of learning all you can about your pacemaker and being ready to advocate for yourself. Too tired to write it tonight. Maybe tomorrow.
Thanks everyone. This group has a made "a difference that makes a difference" for me..