Update on multiple allergies to pacemaker and leads

I'm a 62 yr old female, I could really use some support. I just got out of the hospital on December 24, I was being treated for reactions for my allergies, as my neck/throat is swelling. They want to remove the pacemaker and leads, but I'm 95% dependent on the top lead and 5% on the bottom lead. I also have some fluid around my heart now that I never had before. They can put in a gold plated pacemaker, but they have found no replacement for the 2 leads. Not anywhere in North America or Europe as of yet. I felt like I was I  Grey's Anatomy as the residents came to see me as most had never heard of a case like mine. I started to give them all nicknames just to keep my spirits up. I do know there are others out there like me. I was wondering if anyone would share their opinions or solutions if they found any on the leads. Thank you.


Leadless pacemaker

by Colombo - 2020-01-07 16:15:45

Can you try a leadless pacemaker? I think the major hospitals are doing them now. 

Sending you good thoughts. 

Leadless pacemaker

by Domkin - 2020-01-07 21:26:13

Unfortunately if you are talking about the Micra, I also have allergies to it as well. I thank you so much for your comment. They are looking for a sack to put the pacemaker in and trying to make me new leads. One of the problems is that I live in Canada and everything has to be Health Canada approved. I've been feeling a bit hopeless lately. 

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I have a well tuned pacer. I hardly know I have it. I am 76 year old, hike and camp alone in the desert. I have more energy than I have had in a long time. The only problem is my wife wants to have a knob installed so she can turn the pacer down.