After a year with the pacemaker I've been diagnosed with cardiac and lung sarcoidosis after a PET scan. Started the prednisone this morning and will see my EP tomorrow to discuss swapping to an ICD. Would appreciate hearing how others have fared with this. I knew this was a possibility for a little while as my symptoms had returned to a lesser degree and my EF kept dropping. The ICD was a surprise but apparently it's protocol as the risk is high with the sarcoid. I haven't tolerated prednisone well as a medrol pack but my cardiologist is hoping that a level dose will work better for me than the tapered pack. I'm starting with taking it every other day. Thanks in advance for any stories. Samantha
You know you're wired when...
You trust technology more than your heart.
I finished 29th in London in 2 hours 20 minutes 30 seconds which is my fastest with or without a device so clearly it didnt slow me down ! I had no problems apart from some slight chaffing on my scar - more Vaseline next time.