Haven't posted in a long long time. 4 years ago took minocyline for 28 days and started burning. Diagnosed with neuropathy. From there got ecoli probably throughout body but no doctors found until simple gyno swab test. Bowels didn't work and stomach. Gyno gave me antibiotics call avelox which causes nerve damage. Anyway lost 35 pounds cannot gain weight and now total body nerve damage. I'm in pain 24 hours and skin and bones in ribs and back. I'm suppose to get my 3rd pacemaker next year. What are my rights not to get one ? I also have a controlled seizure disorder and reason for pacemaker is neurocardiogentic syncope. I've had same wires for 17 years. I do not want a pacemaker to extend life. It sounds sickening not to get a pacemaker but in very bad shape. I would like to say I used to exercise 5/6 days a week before this. Very active working and playing ! I'm not depressed just very sick. I've been to John Hopkins no doctors know what happened to me. Total 8 neurologists including Columbia in NY too. I also had a botched floroscopy epidural spinal tap which caused tarlov cyst, sacral swelling and 8 bulging discs.
You know you're wired when...
Like the Energizer Bunny, you keep going.
Your anxiety is normal. It takes some of us a little time to adjust to the new friend. As much as they love you, family and friends without a device just cannot understand the adjustment we go through. That is why this site is so valuable.