Pacemaker rights

pacemaker rights

by new to pace.... - 2019-11-15 17:53:24

You might just watch what you are eating to see if something you are eating causes some of your problems. If that happens take all those food items including spices etc. Our of your life for 6 weeks.  than put one at a time back in until the reaction comes.  The other faster way is through food senitivity blood tests.  their are a couple of companies out there.

    I found out a many years ago that a medication i was taking was coated in lactose and caused many problems.  Did all kind of tests to see.  one day i looked at the piece of paper that came with the drug.  Once i stopped taking  the drug.  The body pains, tireness, bloating etc went back to normal.  of course could not cold turkey had to reduce the medication slowly.

I'm sorry you're in so much pain

by Jo S - 2019-11-15 19:37:48

First, I am very sorry you're in so much pain.  I'm not a legal expert, but I don't think anyone is going to force you to get a medical procedure done against your will.  In fact, my understanding is that patients can request to have their ICD turned off under certain circumstances like  terminal illness or reaching a point where they don't want their life prolonged artificially.  I don't think doctors are bound to honor the request to withdraw treatment by actively turning the pacemaker off in all circumstances, but I certainly have trouble believing that they can make you get a third pacemaker if you don't consent to treatment.

I would talk to your doctor and see what they say, then consult a lawyer if necessary.

Thank you everyone

by Blondpacer - 2019-11-16 09:10:44

I hope everyone didn't think I was ungrateful for my time with a pacemaker. At 42 it saved my life because of neurocardiogentic syncope. I have autonomic neuropathy also which attacks the organs. I also have dysautonomia which affects the nervous system.17 years doctors still disregard and do not study the condition. I've had over 50 blood tests over 3.5 years. All weird blood tests testing everything under the sun. All blood tests I test like a perfectly healthy person. I miss exercise so so much but cannot. Make sure to exercise for me ! Also be be careful with antibiotics. Some cause nerve damage and tendons to rip. That started this. FDA in 2013 gave a warning on this. Unfortunately my gyno gave me avelox. Just a FYI. Thank you. 

No replacement?

by Gotrhythm - 2019-11-16 17:43:10

You absolutely have the right to refuse a replacement pacemaker. Indeed, as an adult you have the right to refuse any medical treatment of any kind.

Because we're not always able to speak for ourselves it's best to give someone you trust your Medical Power of Attorney, and make sure that person understands that under no circumstances do you wish to have your pacemaker replaced.

BTW I have decided I will not replace my pacemaker when this one gives out. Not because of reasons such as yours. Fundamentally, I just don't want to replace it. So you're not all that unusual. It's your decision and you don't have to justify it to anyone.