I am wondering if any members have a myeloproliferative neoplasm (MPN) such as polycythemia vera (PV). If so, have your doctors made any connections between hypercoagulability and your heart condition? Did your MPN status change anything about your diagnosis, pacemaker installation or programming?
I have polycythemia vera and was diagnosed with sick sinus syndrome in July 2019. I had a single lead atrial PM installed then. My resting heart rate has been very low for years (always under 50, more typically 40s) then it got lower and lower until it stopped.
The cardiac folks and the hemotology folks don't seem to talk to each other and neither group seems curious about a possible interaction of these diseases or different approaches to treatment. In questioning my cardiac surgeon just before implantation it was decided to switch me from a dual-lead to single-lead to reduce potential clotting issues (which PV folks are prone to). But this decision was based on very limited information and I am still not sure if it was the right thing to do.
I would be grateful to hear about the experiences of other MPN patients.
You know you're wired when...
You have a little piece of high-tech in your chest.
I had a pacemaker when I was 11. I never once thought I wasn't a 'normal kid' nor was I ever treated differently because of it. I could do everything all my friends were doing; I just happened to have a battery attached to my heart to help it work.