Anyone with a Medtronic Azure XT SR MRI Sure Scan out there that's a runner?

Been with a PM for almost a year and am struggling to get back into running. The doc was able to put only one lead in the lower chamber. 


8 Comments

returning to exercise

by Tracey_E - 2019-11-06 20:50:24

I have a different pacer, but most of us face the same issues. What's happening when you try to run? Do you have heart block?

edited: found your other post, sorry to hear you are still having problems. Have you done a stress test? Get on the treadmill and let them watch what happens when you exert.  For me, that was the most efficient way to get the settings adjusted. 

Probs running

by SNORTINGDONKEY - 2019-11-06 22:09:03

They did put me on a treadmill once but I am not sure they did it right. Plus they didn't really try modifying the settings after looking at the results.

The problem I am facing is that I am huffing and puffing after running a few yards..I am (was) an endurance athelete and could run 6-7 miles at a sub-11 min/mile pace...now I can barely run 3 miles at a 15 min/mile pace. At first I thought it was because my PM was driving the HR is too high but in hindsight I think it might be something to do with pulmonary function(?) 

it's possible

by Tracey_E - 2019-11-07 08:53:12

To start, I would want an echo to see if my heart function is the same as it was before.

I would want a stress test to see what my heart is doing when I start to huff and puff. At that point, am I pacing or beating on my own? Is my bp and O2 sat normal?

I would want a holter to see what my heart does over a 24 hour period, if it catches any anomalies. 

If none of that catches anything, then I'd ask about a pulmonologist, also go back to my GP for general blood work, etc, to see if anything else is going on that's not cardiac.

If my doctor isn't paying attention, I'd get a second opinion in a different, unaffiliated practice. Ideally, a board certified electrophysiologist who is active themselves and has other younger, active patients. I've had problems with couch potato doctors who don't see the importance of being active and write me off as asking too much. I've had well meaning, perfectly wonderful doctors who didn't have other patients like me so they were stumped. Some were more willing to dig deeper and do some research than others. 

The particular model of pacer you haven't isn't as important unless you have one with one of the newer, tricky rate responses, which you do not, Medtronic and Abbot/SJM are fairly straightforward.

treadmill

by Tracey_E - 2019-11-07 08:55:14

Ideally you want to be on the pacer computer with the rep present while on the treadmill. They can make changes and you can test it out immediately. I've done that twice when tweaking it wasn't getting us anywhere and I had to keep going back. 

There are a couple of PM vendors who have products that work really well for athletes

by crustyg - 2019-11-07 15:59:55

My PM was tuned for me with a set of exercises on a static bike to calibrate the Minute Ventilation feature that feeds into Rate Response.  It could as easily have been a treadmill - although a simple accelerometer usually works well for running.  We adjusted my settings 3 or 4 times because of the exercise (with the vendor's rep present) to get the parameters optimised for me.

Answers...

by SNORTINGDONKEY - 2019-11-07 18:28:13

Hi!

They did put me on a treadmill with the rep present but I don't think they tweaked the settings more than once...it was kind of weird. Asked me to try it out on the road.

I am paced 100% of the time.

I did think about going to a pulmonologist...my BP is normal and O2 sat was normal too. 

I do have an echo appt next week...I will bring these questions.

Running

by Dh13 - 2019-11-10 16:20:18

I have that pm.   It’s been about 8 weeks since the implant.   I started to run  but pm needed to be adjusted.   I have not tried out the new settings yet.   I’ll let you know how it turns out.   

Interested

by Pacer2019 - 2019-11-14 23:19:23

I'm only a few weeks in.  I was extertimg hard on 10/19 .... ended up in hospital that evening then inserted on 10/22....so it's fresh.

i was in great shape so I dont feel like I've lost too much in that short time - I'm known for stamina and mobility non the court.

i have been walking 2-3 miles a day and it feels ok.  The other day I was on an indoor track and decided to run or jog a couple of laps. That felt fine.... I track my heart rate with a Garmin and that night notice my heart was beating 175-180 when I was running !

i have never been in that heart range..... the amazing thing is I didn't feel it ...usually in that ranged you can even talk and are breathing mightily.

wonder if that was because of my pacer ?

You know you're wired when...

You fondly named your implanted buddy.

Member Quotes

The pacer systems are really very reliable. The main problem is the incompetent programming of them. If yours is working well for you, get on with life and enjoy it. You probably are more at risk of problems with a valve job than the pacer.