Recovery - still short of breath
Hi everyone, I am a newbie. I had my pacemaker put in on July 24th. Just to give a little background - I have a rare disease called TTR Amyloidosis. It's where amyloids attack my heart and stiffen it, thereby making pumping of the heart an issue. As a result I am in a clinical trial study for my disease. I have been experiencing a lot of shortness of breath of late and the usual symptoms of congestive heart failure, bloating, etc.. My doctor suggested that I get a pacemaker with a third wire. The third wire goes behind the heart and helps the chambers work in sync as mine were not. I believe this pacemaker is called a biventricual pacemaker. They felt if my chambers were in sync, my heart would not have to work as hard and my breathing would improve. In any event, when they went to put in my pacemaker, they discovered that my heart's electrical signals were frayed by the amyloid and that I definitely needed the pacemaker, even though initially I was getting it for the sole need of the third wire to sync my chambers. However, due to open heart surgery four years back there were blockages which prevented the doctors from getting the third wire attached. They tried very hard, but unfortunately, they were not successful. That third wire was supposed to help me with shortness of breath due to the chambers not in sync. My questions for everyone is this - do you feel immediate relief of your shortness of breath or does it take some time. I ask because I was feeling shortness of breath due to the chambers not being in sync and in addition from my electrical signals not working and afib. I was hoping to get some breathing relief just from the regular pacemaker, but now I am concerned that I will never be without shortness of breath. Can anyone tell me how long it took to walk after surgery without any shortness of breath. Thank you.