Day 7

So here I am again.....Its been a week, I do feel a bit better but really expected to be able to do so much more. I turned 51 last week, have always been active and work 2 jobs. Now I can barlely take a shower, dress and I'm ready for a nap :(

Really getting depressed and tired of people tellimg me oh its just a pacemaker, my so and so had one and was fine the next day!!! 

I feel like such a complainer, but now I cry at the drop of a hat. Not due to see the doctor until Aug 2 and i want to try and get back to a few hours at work but others tell me to just sit home.

Anyone feel depressed post surgery? This is not who I am or was prior to my dual chamber PM


9 Comments

Sorry if I'm one who you're compared to.

by AgentX86 - 2018-07-23 23:55:59

I did bounce right back.  I went back to work the second day (didn't get out of the hospital until noon on the day after, or would have gone straight to work) after surgery and felt great.  That lasted about a month and then things got a lot worse for a couple of months.  It's all good now, though.

You don't say what the reason for your PM but one thing I learned here is that everyone is different.  Attitude means a lot but it's not all in your head.  You've been through a lot and your body is telling you that it didn't appreciate it.  August 2 isn't all that far away but if you're feeling that bad, there is nothing stopping you from contacting the medical team and complaining - loudly.  No one important is going to think less of you because you're emotional.  You've been through a lot and if you're not doing as well as you think you should, your team should know about it.

Above all, don't worry about what others think.  All that matters is how you feel.

Hang in there Celeste

by Grateful Heart - 2018-07-24 00:22:04

I just posted a Day 4 post a few above this one so take a look.   It takes more than 7 days for many to feel fully recovered....myself included.   

I'll respond to you more tomorrow....it will get better.

Grateful Heart

Patience

by Bela - 2018-07-24 01:14:53

Everyone body reacts PM differently.  I had a lot of problems in the past.  It appears that I complained a lot to the point I thought it was all in my head until I met Jeff who took the time to listen to me and let me know what I was feeling is real. He found my problems and adjusted PM.  Although there is still some odd feeling can live with it.  So hang in there you will feel better soon.  

Still Knackered

by Paulb - 2018-07-24 01:39:57

I had 7 days in hospital because a wire came loose and I had to return at the rush.  It is now 12 days since my second op and I am still very tired and sleeping at odd hours. I tried a couple of days in the office but left early before I fell asleep.  I have been anxious about being dependenct on a computer and battery for the rest of my life and in the past coue of days that has lessened.  It is traumatic, especially with no previous medical history and takes time to adjust. Some get over it qui ker than others but it does seem that everyone finally adjusts. Being able to express your concerns in a forum like this and knowing there is support certainly helps the adjustment process. Please do not hesitate to whine, complain, be neurotic and a the physcogical aspects to work out. 

Hi Celeste

by NiceNiecey - 2018-07-24 05:05:59

A common problem that occurs after any messing around with the heart ❤️ is depression. Whether it’s a valve replacement, open heart surgery or getting pacemaker wires inserted into the heart it can happen. This is well documented and I’m not sure why cardiologists aren’t more proactive in treating it. You are normal!! Hopefully, in time, it will go away on its own but in the meantime, mention it to your PCP or cardiologist. Hang in there!

Niecey

HI there

by bluevelvetcake - 2018-07-24 06:40:07

Celeste, I wasn't trying to be negative nancy on my past replies to you but if you go back and read them I told you how much pain and depression I felt after having mine put in so that you wouldn't feel alone. I also felt so alone. The only thing that got me through it is my husband had prostate cancer and got the same thing like if you're going to have cancer that's the cancer to have. Or oh just prostate cancer, that's not a big deal, ect. He understood that people poo poo you off sometimes because of preconceived notions about your medical issue. 

I had my PM put in on the 5th of June. After two weeks I saw the new EP and took me off of Lopressor that the surgeon had put me on. He said he didn't like the mental issues that it causes in younger patients. Yesterday I saw him again and said how good I feel and he said he really things it was that tiny dose of lopressor that had me dragging so bad. Are you on any medications? Once I got off of it, I felt a lot better and then healed REALLY quickly. 

Also, just force yourself to go on a walk. It will pep you up, I promise. And know that this will pass quicker than you think. You are just in a rough patch right now but keep your eye on the end of the tunnel. 

You’re not a complainer at all

by Electric Elise - 2018-07-24 11:34:48

Hey Celeste and first of all, happy belated birthday for last week! Sorry to hear you’ve been a bit down - i HATED my first week too and felt so annoyingly helpless. Now i’m at the beginning of week 3 and although i’m way better now, i still feel i need way more to get back on track completely. As i was saying to Grateful Heart earlier, i wake up tired too and i even nap in the afternoon, which is just unheard of, haha!

If there’s any kind of advice i could give you, it’s this - don’t give yourself deadlines “oh it’s now week 2, i should be doing this, that and the other and i should be feeling THIS good”. Take your time with it, sleep if you’re tired, relax, try do some of the things you really enjoy but never used to have time for before the surgery.. And just allow yourself to slow down every now and again, when your body needs it. Two days ago i was doing light renovation work at a studio, then yesterday i just sat in bed lazy, reading and watching movies ALL day. 

It will get better, so stay strong.

Yup

by Jimmy Dinfla - 2018-07-25 23:32:57

Depressed post surgery - yes for having a condition that required an implant and for the painful recovery.  As time passed, I accepted the fact that the unwanted device is offering me a safer future.

Feeling flat too

by Ding - 2018-07-30 20:50:25

I'm 10 days post op, to be honest i been over doing things a bit, but I'm trying to be good to myself. I just can't  believe that after a major heart valve repair in 2016 i felt so positive and that feeling never left me till the day I had my pacemaker fitted. I can't say I feel depressed just flat & anxious and slightly hyper so my head is all over the place. It's like i just want to feel better now but my head won't let me, like somthings holding me back. All my family say is rest, relax. I'm trying but I'm just getting frustrated and feeling like a fake and that I should feel more positive now. I'm not keen on the battery in side me and feel like I'm gonna fry a little inside. Apart from that I don't know why I feel a bit glum about myself a bit cross that I'm not feeling possitve again. I added to this post cos I think it relates to what I would have said had i made a new post. 

 

You know you're wired when...

Your ICD has a better memory than you.

Member Quotes

In fact after the final "tweaks" of my pacemaker programming at the one year check up it is working so well that I forget I have it.