A new one to me!
Hi foks. I've been out of touch. My husband and I just retired and moved an hour away to our down-sized home after depositing our last child in college in Colorado (we live near Seattle). I'm back with a new issue I'd love to hear thoughts on.
I got my first PM in January, had pain/problems with its location, so had it surgically relocated to a better site in July. Everything was great for a month -- no pain, better arm mobility, etc. It remains true that the new pocket is pain-free, my shoulder doesn't bump into the PM anymore, etc. But a month after the relocation, 2 small but prominent "bumps" appeared right under my scar, and they've grown increasingly prominent and painful. The skin over them is exceedingly thin. I saw my EP Monday, and the general surgeon who performed the relocation surgery today. They consulted on the phone while I was in the surgeon's office and agree I should undergo one more surgery. I'm told my skin remains exceptionally thin below my collarbone, the electrical leads and related parts are extremely close to the surface, and again I'm at risk of skin erosion, infection and continuing pain. There is a plastic flange that the electrical leads are threaded through, then stitched to the subcutaneous tissue to hold the leads in place, and this flange has two tiny "wings" on it (looks sorta like a 1-inch tall rocket) and those "wings" are what's causing the prominent bumps and pain. So they can cut off those "wings" now that everything is held in place by scar tissue, possibly move the leads under the muscle if it looks like they're unable to give me a comfortable site any other way, and most extreme, might decide the best solution is to move the whole system under the muscle. So I would go into surgery not knowing exactly what they plan to do until they get in there and assess the situation more closely.
Has anyone had this sort of situation, and if so, what was the outcome? My doctors are working very hard to get me the right, comfortable outcome with reduced risk of skin erosion, infection and associated problems. They answer all my questions, are great listeners and empathizers. But I'm shocked that this so-called "minor surgery" I signed up for last January is now turning into a third surgery in 9 months. But the best news is that my cardiac problems continue to be completely resolved -- that part is great!
Thoughts anyone? As always, thanks for your wisdom!
Take care, Cathryn