Carotid sinus hypersensitivity

My medical diagnosis is carotid sinus hypersensitivity. I'm due for a 3 month checkup next week and am compiling a list of questions for my cardiologist who is an EP. Still not clear on my diagnosis and wondering if anyone has information. My main symptom was a syncope. Any thoughts or comments that might help me focus my questions will be appreciated. Thanks. Bob


3 Comments

That is my diagnosis as well

by myronlh - 2009-07-27 05:07:24

I am scheduled to recieve a pacemaker on Aug 10, 2009. I am hoping that things have gone well for you. It has been awhile since your 2007 posting, are you still following this site?

response

by Robert - 2009-08-04 11:08:42

Thanks for your reply. I actually had a good session with a PA at my EP's and got several of my questions answered. In response to your question, I'm doing well. My pm is working harder now than it did when first installed, but still only about 22%, whick I guess isn't bad. Overall, I highly recommend the procedure. I have two good friends who have had it done and both are doing very well. I'm sure you will, too. Best wishes with your procedure. Bpb

Carotid Sinus Hypersensitivity

by JoesPM - 2019-07-21 18:49:56

Well, Here I am in July 2019 having just gotten my 1st PM for the same condition and hoping this club would have more members with the same experience. But find only two in 2009.  I am confirmed that this is rather rare.  Hoping the 2 mbrs in 2009, "Robert" & "myronlh" are alive and well this decade later. 

Carotid Sinus Syndrome is blamed for unexplained syncopes and represent about 9% of syncope patients in a 2015 Euro study.  A 2018 updated study was more intensive and focused on definitions and classifying subsets, etc.

Carotid Sinus Hypersensitivity is pretty well confirmed by carefully massaging the carotid artery from the sinus area down while wired up to an ECG.  If your heart stops and/or you syncope. You are hypersensitive!  And the vagal nerve is to blame.  Why? How Come? How to treat? Curable? Etiology? Epidemiology? No real answers excepting install a PM pdq and hope it keeps the heart from stopping.  My heart did stop for 4.5 to 6.2 secs on 3 trial massages just before a Tilt Table Test for sharp drops in blood pressure due to orthostatic hypotension.   Test was immediately aborted and got a PM a few hours later. 

I got more info and some questions to share with other club members if anyone else is out there in cyber space with the same conditions (i.e., CSS/CSH).

Look forward to responses and if anyone knows of a clinic or teaching hospital that has an electrophysiology subset specialty in CSH.

JoesPM

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At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!