Fluttering everyday at the exact same time

This is my first post, and have only had my pacemaker 6 months.
Ever sine I had a device check 30 days ago I have had what I call flutters, slight shotness of breath, and just uneasy feelings twice a day, every day, at 7:36 pm and 7:50 am! Has any one else had these reactions? I have called the dr. But really they haven't called me back. Its getting old!!! I could set my watch to these, they are so precise!

7 Comments

self check

by Tracey_E - 2015-10-28 03:10:54

Sometimes self checks feel like that, but it would be odd to do it twice a day. They try to set them to happen at night so we sleep through it.

What is your setup?

by PJinSC - 2015-10-28 08:10:38

You don't have anything in your bio to explain what device you have or whether you have a home monitor set up. Can't make any comments unless you explain what you have. I have a Boston Scientific PM and a Latitude monitor home monitoring setup but it is read only, it does not make my PM do anything. I have read some postings and comments about the new Merlin monitors, but have no experience with them. It does sound like TraceyE is on to something.

that is strange!

by John@PC - 2015-10-28 11:10:16

I'm like PJinSC with a Boston Scientific generator and Latitude monitor. Always thought these monitors were "read only". What you describe is the sensation I get when paced in the lower chamber during my device check but that's done at the EP clinic!? Maybe someone can provide more info about what a Merlin self check does.

A legit concern, they all are

by oldearthworm - 2015-10-29 02:10:38

Call the doctor again , again and again, until they respond - IMO the concerns are legitimate .. I hope to receive a monitor next month from the VA, I hope it is sophisticated ..if only 'read only' .

To Repeat....

by PJinSC - 2015-10-29 07:10:50

Freebird, please go into your profile and input the information listed. You can get your PM model, etc. from your PM card, if you have received it. No one can make a SWAG until we know setup at you have. In my case, the hospital gave me a temporary paper with all the PM information on it when I checked out and I got the permanent card from Boston Scientific a few weeks later.

self check vs home monitor

by Tracey_E - 2015-10-29 12:10:29

Not the same thing. Self checks happen on their own when they're programmed to, no equipment needed.

Auto checks

by mariejabroni - 2015-10-30 01:10:03

Freebird and other, 99% of pacemakers now have the ability to do these 'self checks' they are usually between 1am - 2am in the morning (as long as the time is set correctly!)

The pacemakers carry out intrinsic tests just as technicians do in the clinic, speeding your heart rate up a little in the top chamber and bottom chambers (only for a few brief beats) so as someone has mentioned, if you don;t use your devise much you could indeed feel these tests as 'palpitations or flutters'

Technicans can turn these auto features off if they are causing you problems. Most devices also store any irregular or fast heart rhythms so it may be worth bothering your technicians at the pacing clinic rather than your doctor.

Hope you don;t continue to suffer and get this sorted out.

Good luck

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It may be the first time we've felt a normal heart rhythm in a long time, so of course it seems too fast and too strong.