how to deal with it when it goes off

Hello my name is phil
Ive had an icd since i was 25 and i am 33 i get scared every time it goes off in the 8 yrs that i have had it it has gone off over 90 times and this past friday it went off again i just got out of the hospital but i still have a hard time with dealing with this im always afraid its gonna go off and i dont know how to deal with it anymore

3 Comments

Talk with EP / cardiologist

by Theknotguy - 2014-11-11 05:11:37

Your feelings are not out of line. Dealing with the shock is hard. I don't have an ICD, so it's hard for me to imagine what it is like. However, other people have had your problem.

I would talk with your EP / cardiologist. People here locally (Ohio) have the same problem and the local hospitals have set up counseling for your problem. Like I said, I don't have what you have, so I'm not aware of all the details. If your EP / cardiologist can't help, contact a local hospital and see if they have ICD support groups. If they don't they may be able to offer other suggestions.

One national organization in the US is Mended Hearts. www.mendedhearts.org They can offer suggestions for people with ICD's. Mended Hearts usually has someone in a local group with your same situation and can offer alternative help. I wasn't able to find a local chapter in Appleton, but they do give contact names. It would be worth looking into.

I hope you can find some help quickly.

real desciption??

by unforgiven - 2014-12-25 11:12:16

that is a real description,Ive been zapped by mine and kicked a horse,they are NOT much different,Just one leaves a hoof print

like a tazer in the middle of your chest,mine has stood me up out of bed
and laid me out in the middle of a store

It aint fun getting hit that's for sure,until it hits,ya wont understand,after it does? you will

.11 zaps in a row,almost enough to grab my magnet
12 would push me to my 45

no sugar coating

shocks are bad

by anniesu - 2015-03-24 11:03:02

Yes they hurt like a bolt of lightning....or like a horse has kicked you in the chest..Dont let anyone say they don't If someone elses hasn't hurt like that I want one like theres...I have a Boston Scientific but it did mis fire 4 times about a month after I got it...I was ready to have turned off and they could have and the dr would have but I decided to leave it and it hasn't misfired since and I have had it 3 years now....So,Im not sugar coating the episode..at all

You know you're wired when...

You have an excuse for gaining an extra ounce or two.

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