What does Pacer Syndrom feel like?

Just wondering if anyone has had this.

I'm about 9 months with my second pacer (Boston Scientific) and I'm experiencing an increased amount of pain around my heart and armpit, with associated dizziness and nausea. With my old pacer, I had maybe 2 afib events recorded every 6 month visit. My last visit showed 14 and it's pretty much jumping or falling out of sync about every 5 minutes now. Can't sleep as I go into afib lying on my back and experiencing a lot of numbness in my hands and legs when I wake up. Also have this odd fullness in my head, like a balloon, that comes and goes.

I saw my pacer doctor in March and he didn't think this was an issue, even with the higher number of episodes. I'm going to see another doctor for a second opinion.

Is it possible that this is what pacer syndrome feels like? Or is it possible that there's nerve damage somehow?

Appreciate your thoughts and experiences.

2 Comments

PMT

by Gotrhythm - 2015-05-08 05:05:06

I had pacemaker mediated tachycardia that took two years to diagnose. That's not exactly the same thing as Pacemaker Syndrome, but similar.

I had 3 Holter monitor tests that showed lots of PVC's but not the "problem." I don't think they really believed me until they saw me collapse.

The main thing I learned is that if there's any way to bring on the problem while you in the doctor's office, do it. Even if you have to pass out.


I'll try

by japandata - 2015-05-10 10:05:10

I will try. I have an appointment coming and d i want them to see it.

Could you tell me what you did to trigger your symptoms?

Also what did they do to make you fell better?

Thank you!

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