Diaphragm Pacing

I posted this morning before meeting with my cardiologist and discussed having an "extra beat" or spasm in my diaphragm right under my left breast. I have been able to find some positions (in a recliner especially) that have eased this pain so I've been able to sleep. I now am pretty sure that I was having this same problem along with some other regular pains the very first night in the hospital.
I had my surgery Nov. 7th.called the nurse that night with pains and she ended up calling the cardiologist who decided to have blood drawn to check on enzymes. I had no more pain the rest of the night or the next day and since everything seemed ok, I went home. I called my surgeon and cardiologist 2 days later with sharp pain in my left breast area and below the left breast because it was becoming more unbearable and closer together. I was sent to have another x-ray which was determined to be fine. Everything seemed to be in the correct position. I met with my surgeon exactly 1 week after surgery and he prescribed anti-inflammatory and a muscle relaxer. That helped tremendously with the pain ( and some pain in my left shoulder down to my elbow) but it did nothing for the spasms under my left breast. Now I had the extra beat, but not much pain. The only way I can explain the Hiccough as some describe it is like a twitch in your eye that just wont go away and can't be ignored. Today I went to my cardiologist and at first she told me that maybe I was just nervous and anxious and was about to tell me again, like when I was in the hospital, that it would be fine... I finally told her that I wasn't and actually lifted my bra and placed her hand on my diaphragm so she could feel the "beating". She then called it a hiccough and set me up an appointment with the Pacemaker tech. for this afternoon saying that the pacemaker was pacing my diaphragm and shouldn't be.The tech. determined that the bottom lead was either faulty or in the wrong position ( had another x-ray), but no matter what, he turned the bottom lead off.... no more spasms yay, but I will have to have surgery again to replace or lay another lead by this one pretty soon. PLEASE DO NOT GIVE UP IF SOMETHING DOESN'T SEEM RIGHT.!! I am a fairly timid person, but I knew this didn't feel like a healing of my body, and I was going to make sure that my cardiologist listened to what I had to say.
Here's hoping the next surgery is a success.:/


5 Comments

Glad they found it

by ElectricFrank - 2012-11-22 12:11:03

The only thing that bothers me is that they tried all the meds and other things when your symptoms were classic for a dislodged lead. This is either a case of putting you off or incompetence.

frank

Voltage

by MonteCristo - 2012-11-22 12:11:31

Hi MsJanet,

I had my PM replaced, along with the atrial lead, in May. Immediately after I was getting diaphragmatic stimulation. To make a long story short it turned out that I was very sensitive and that the cable was in close proximity to the phrenic nerve. I am so "sensitive" that even when the pacemaker goes through the initialization process when it is being interrogated that my diaphragm jumps around. We wound up lowering the voltage on the lead and the hiccups went away. Also as a result it has extended the life on the PM to 14 years and I have 3rd degree AV Block and am paced 99% of the time.

So maybe you could ask the tech/Dr. to turn the lead on again and just lower the voltage. If it works, great! no need for the surgery. It's worth a try.

Good luck and let us know how it goes.

Todd

What's your diagnosis?

by golden_snitch - 2012-11-23 04:11:47

Hi!

I was suggesting the same thing as Todd, but apparently that did not make any difference? Did they try to set the voltage (amplitude) as low as possible?

What also staggers me a bit is that they can just turn your ventricular lead completely off, and you're doing well. May I ask what your diagnosis is? Do you even have a problem with the AV-node requiring a dual-chamber pacer or do you have a sinus node issue? If it's a sinus node issue only, then why even bother to replace that ventricular lead? You don't need it, and in sick sinus node patients ventricular pacing only harms. I have been living with a single chamber, atrial pacemaker with absolutely no problems. When I started to develop heart blocks, I had an upgrade to a dual-chamber pacer, but before that I did very well with a single-chamber for about eight years.

Best wishes
Inga

Msjanet

by MsJanet - 2012-11-23 05:11:39

The tech. did try turning the voltage down, but ended up having to turn it off. After turning the bottom lead off he said that my surgeon had some difficulty getting the lead positioned correctly and perhaps it was too close to the phrenic nerve or it had moved enough to cause the problem. I certainly plan to ask about leaving my pm as is because the tech also said that the lower chamber, even with the lead turned off, was correctly following the upper chamber on it's own. I'm embarrassed to say that I don't know the correct name for the actual diagnosis. I will be asking more questions this coming Wed. when I meet with the Cardiologist again.
I was told that my pulse went as low as 25/min. and had a pause of 3 seconds. My PM is set at 60/min.
I will ask about turning the lead back on and trying to keep the voltage low before going through the surgery again. just in case.
I appreciate your feedback and suggestions. Anymore? Send them my way.

Msjanet

by MsJanet - 2012-11-23 05:11:54

ps. I will also ask what the diagnosis is so I can be informed enough to make some intelligent decisions.

You know you're wired when...

Friends call you the bionic woman.

Member Quotes

I live an extremely normal life now and my device does NOT hinder me in any way.