won't need a pacemaker anymore

by marvel
2008-03-06 08:03:16
Surgery & Recovery
2608 views
28 comments

i was told by my cardiologist that i will need a new heart because of my left ventrical collapsing, anyways i have had my pacemaker since i was just 6 month old and i am now 21 going to 22 what i need to know is that if you know anybody who has had a pacemaker for more than 2 decades and then have it removed from them, no longer needing it, i need to know if i will be the first person in history to have my pacemaker for more then 2 decades then not needed anymore.

28 Comments

Not sure ...

by admin - 2008-03-06 08:03:33

I do not recall reading such a statistics. I can say that you are special. No longer needing a pacemaker after such a length of time is amazing.

All the best,

Blake

GOOD LUCK

by RONNYNOB - 2008-03-07 01:03:05

You say you need a new heart so I would presume you mean that you are are going to have a heart transplant,
If so I doubt if they will give you one that needs a PM.
Good luck.
Ron.

pacemaker

by dettiger2003 - 2008-03-07 05:03:05

Canadian singer & songwriter, Jann Arden was born on March 27, 1962. She had a pacemaker for 17 years, but it was recently removed because she no longer was using it all that much, if ever. Besides, it kept setting off alarms everywhere she went. "One tends to really think about living and dying when you get a pacemaker implanted at 20 years old." Her pacemaker experience inspired her popular "Will You Remember Me" song.

transplant?

by slarnerd - 2008-03-07 07:03:54

Hi marvel. I am reading your post, like Ron, to mean that you now will have a heart transplant. Is that right? So your new heart would likely not also have av block, right? Hence the lack of pacer need. I am very curious about responses to your inquiry too. My son is 19 months old and has had his pacer from birth due to complete congenital heart block. The EP has said that he can live a long, normal life with a pacer but I am now realizing that they don't really know that. If the pacemaker itself is only about 50 years old and they have only put them in infants for the past 30 years or so, then how do they know how long they can live? What sorts of problems are people facing after being paced for av block for decades? Is your problem due to long term pacing? Best wishes to you, whatever the circumstances - I know this must be a scary and confusing time for you.

new heart

by Melvin_Mary - 2008-03-07 10:03:45

My husband had an ICD since May 05. The next month he was put on the transplant list. Feb 4 08 he got his new heart. The ICD is gone. His new heart is doing great. He feels great too. Good luck

a question for you . . .

by Harry'sMommy - 2008-03-07 12:03:00

If you don't mind my asking, did you originally have structural problems with your heart when you received your pacemaker, or was it an "electric only" problem. The reason I'm asking is that my son received a pacemaker when he was 18 months old, but I was told that he didn't have any "structural" problems that would lead to having other heart problems (such as a chamber collapsing), or more surgeries (other than replacing the pacemaker every 5-10 years). So I guess I'm asking is if the pacemaker/electrical problems with your heart eventually led to you needing a new heart, or if there were other structural issues with your heart before the pacemaker was implanted? I guess I'm a bit skeptical that he will continue having pacemaker surgeries without damaging his heart.
Thanks in advance for any information that you can share with me (you could PM if you don't want to post for everyone), but I understand if you don't wish to discuss it all.
Sending prayers and positive thoughts your way!
Harry's Mommy

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:00

Hi I have not gotten to know you but would love to you are close to my age. I developed tears when I read your post as I cant imagine at all what you are facing. Being so young and life changing all the time please give up more info on how we can be praying for you. Many thoughts and love! Tammy

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:03

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:05

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:08

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:10

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:14

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:16

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:18

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:20

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:22

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:25

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:28

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:30

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:34

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:36

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:39

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:42

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:44

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:56

Prayers heading your way.

by tcrabtree85 - 2008-03-08 04:03:58

hii

by pacerpacer - 2008-03-08 07:03:48

I have pacemaker for 25 yrs, no problems till date. All the best to you!!!

You are in my thoughts...

by cottontop - 2008-03-09 03:03:50

I can only imagine a little of what you must be thinking because of one of my conditions. The prognosis now is about 4 years and I will probably have to have a heart transplant. I have known this since May of 2007. I can't imagine trying to deal with this at such a young age (I am 50). As I am the mother of 3 and my youngest is 23 I know what she would be dealing with. My heart and soul go out to you. I hope you have a great support system such as God, family and friends. A positve attitude also. You will be in my prayers. You are an inspiration to me. Please keep us all in touch as when this will take place. We are one big "family" here. Let us know if there is way we can be of help.

God bless you,'
Amy

You know you're wired when...

You have a 25 year mortgage on your device.

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