HEAVY METAL POISONING
- by staci
- 2011-09-10 11:09:36
- Complications
- 7296 views
- 36 comments
My father had a documented allergy to potassium dichromate (hexavalent chromium VI) and his cardiologist and pacemaker company rep overlooked this allergy (documented on his medical record) and installed a pacemaker that contained this poison. My father over the past couple of years experienced classic symptoms of heavy metal poisoning and was treated for each problem as it occured by the appropriate MD.
1) 6 months after implantation of the PM Dad experienced bilateral leg rashes/ezema-saw dermatologist and given steriod cream to control. Heavy metal poisoning causes rashes.
2) 9 months after implantation, it was noticed that for the past few months he was experiencing dementia type behavior-Mom took him to a geriatric internal medical doc that specializes in memory loss and was given prescription for namenda--never saw a change in his mental status only ever increasing diminished thought processes and memory loss. Heavy metal poisoning causes delerium and dementia type behavior.
3) few months later Dad was found to have severe anemia. Bone marrow biopsy revealed no iron stores and was treated with heavy doses of ICAR-C plus and it did increase his RBC and H/H counts. Heavy metal toxicity causes hemolysis which destroys RBC.
4) couple more months passed and Dad was being treated for corneal ulcerations. Despite agressive treatments by the opthamologists, these ulcers never healed. Heavy metal poisoning causes eye ulcerations.
5) during the treatment for the corneal ulcers Dad needed his cream refilled for the leg rashes and saw the Dermatologist again, this time the Doc saw several "precancer" type spots and froze several off and prescribed a stronger steriod cream for leg rash. Heavy metal poisoning causes hyperkeratosis.
6) BAM! All at once Dad had changes in his mental status and coordination--almost stroke like behavior. Taken to ER at local hospital and admitted.
7) Within hours after admit to the hospital, Dad was diagnosed with encephalopathy-spinal tap done and battery of testing done on spinal fluid which revealed no viral or bacterial infection.
8) within 24 hours after admit Dad experienced severe respiratory distress and was placed on a ventilator for support.
9) 7 days later he was weaned off the vent only to suffer exteme mania for the next few days and then placed back on vent.
10) Dad continued to get worse and although it was mentioned several times to the Docs and medical staff of his allergy to metals, they shrugged off my pleas for help and/or laughed at me and my family.
11) renal failure sets in requiring dialysis
12) It seemed that Dad was losing the battle, and after requesting/demanding the testing for chromium and offering to pay for it, the Doc finally ordered "urine and blood testing for chromium.
13) The urine and blood had to be sent to an outside lab for testing.
14) Urine test can back positive for chromium and nothing was done by medical staff
15) Blood came back positive for chromium 5 hours before Dad died.
Now I sit here and type this message to all that might read it in hopes of saving a life. I wish to file a medical malpractice suit against the Cardiologist and PM Company rep that installed the pacemaker and overlooked Dad's allergy to the metal. Wrongful death suit because of my dad's extreme suffering and eventual death. Failure to diagnose the poisoning--they really did laugh at me when I suggested that this might be the root cause of his failing health. But so far I have been unable to locate an attorney that can even understand the issues I listed above and that my Dad died as a result of something that was put in him to help him live and it ended up being detrimental and causing his death.
I can only offer the advice of making sure to have testing for metal allergies done if the doc tells you that you need a pacemaker, defibrillator, stent, knee implant, ect. Once any of these items are implanted into a human body the removal is more detrimental than the reason it would be needed in the first place.
Yes, hindsight is 20/20 and now I have lost my dear father and best friend. Please be aware and know how horrible this has been for my Dad and family. Educate yourself and know that if I did not eventually reasearch Dad's allergy, his listed reason for death on the death certificate would be cardiopulmonary arrest not heavy metal posioning and we would not have had that closure. Really, doesn't everyone die from cardiopulmonary arrest?? otherwise they would be alive?? Just making a statement here.
36 Comments
Dear Staci...
by Lisarose - 2011-09-12 05:09:52
Thank you so much for this post, I am so sorry you lost your father, he should never have died, plain and simple.
Your research and advocacy will not be in vain, already you are reaching many many people here on this site, they will spread the word as will I. You have been through a lot and likely do not have a lot of energy left... but... if you can, do not give up searching for a lawyer who will understand you and fight for your father's cause. You and your family deserve compensation and the opportunity to have this entire trauma well documented with possible court enforced recommendations created so that policies change and person's with metal allergies are never overlooked again.
Please take care of yourself and keep in touch...
Lisarose
Sorry
by F0xieR0xie - 2011-09-13 05:09:46
Thankyou for putting the warning out there, it won't be in vain.
So sorry you and your family had to see your dad suffer. I can't imagine how hard that must of been, you must be drained.
Take care and keep in touch with us x
Thank You All
by staci - 2011-09-13 06:09:48
Thank You all that have responded. It means a lot to know that you folks are out there. I really hope the story above doesn't strike home for anyone, but since it is such a slow poisoning and if you are aware, you can be saved by having the pacemaker removed. A simple blood and/or urine test for the metal reveals if it is leeching out into your system. I have read that symptoms go away in about 3-4 weeks after removal of the metal.....but then what are you gonna do without your pacemaker?? I understand there is a wrap to envelope the metal to stop the leeching out of the poison.
Yesterday I got the call from the Coroner's office stating that testing on his pacemaker was not able to be done at their pathology laboratory. If I still wanted it tested they had it in the freezer labeled with his name and account number. So off I go to the Coroner's office and waiting for me in a tamper proof styrofoam box on dry ice was my Dad's pacemaker. Never ever would I have thought that picking up my Dad's "implanted device parts" to be something I would need to do. So now the PM is in my freezer--yes it is still in the box as I have no desire to look at it, but know I need to keep it for some future reason.
Getting an attorney to understand this "life taking" road my father has been down is incredibly hard. This is my message today from who I thought was gonna be the perfect attorney:
______________
"Staci, I have been extremely busy the last few weeks and I have been out of town. I dont think I am going to be able to assist you with your case. I suggest you try to obtain another attorney as I simply do not have the time to devote to the case.
Sincererly,
Shirin E. Harrell
BA, RN, MBA, JD
Harrell & Nowak
Suite 2107
650 Poydras Street
New Orleans, LA 70130
Tel: (504) 522-7885
Fax: (504) 528-3131
sharrell@harrell-nowak.com
Get the Nurse-Attorney Advantage!"
_______________________________
Guess my Dad's case was not good enough for her. I thought that the "nurse-attorney" advantage she bragged of was gonna be just what I needed to punish the Doc and PM company, WRONG AGAIN! She can't even spell correctly--not that I am a perfect speller either but did catch the "Sincererly" part.
I am not giving up on this. Actually the more I get shoved aside by the legality aspect of this, the deeper I dig and the harder I fight.
When I researched the PM company on Google--an ad for the Cardiologist that implanted my Dad's PM came up advertising his business. Makes me think he is getting kickbacks from the company.
My Dad hated doctors. He and his old retired buddies used to sit around and talk about them. Dad always said that Doctors are blood sucking bastards that only want your money. Even though I usually defended the Doc by saying they are there to help you, I now know that Dad was RIGHT!
Again Thank all of you for understanding and allowing me to become a part of this club so I can at least vent some and try to help others that may be getting poisoned.
Your very welcome, Staci,
by Lisarose - 2011-09-18 04:09:07
Stay strong, and keep in touch...
Lisarose
JeriLeighL
by staci - 2011-09-22 07:09:32
Testing needs to be done on LEAD WIRE(S), THE INSULATION AROUND THE LEAD WIRE(S) AND ELECTRODE(S)!!!! And even though the PM is titanium and medical grade titanium at that, it is not 100% pure. Similiar to gold being 24 carat or 14 carat and such.
Chromates are found in ALL metals. Purest of chromium is found in chrome plated items like a chrome bumper on a vehicle. Your step father needs allergy testing immediately. There are tests specifically for metal allergies which your SF needs immediately.
Removal of the lead wires and electrodes is a dangerous procedure in itself and one would want to be sure of the need of removal before having it done. But dying a slow and painful death is worse than living without a pacemaker. I understand that now they have PM that are wrapped before insertion.
The lead wires are insulated just like a regular electrical wire. The color (orange, green, brown, yellow) of the insulation is also made with chromates. If the wire is fractured the metal can leech out of it quicker. I have read that it takes about 3 years for the chromates to leech out of the wires anyway. Chromium colored paints are used in things like the yellow on school buses and such.
Specifically note if your SF can wear "cheap" jewelry, watches with are without a rash. Not all folks with allergies will develop a rash. Non healing "chromium" sores. Look on the internet for pictures.
Has your SF had a bone marrow biopsy yet to check his iron stores or any reason given for the anemia? Check out hemolysis on the internet. Check out heavy metal poisoning on the internet and you could research for days. I did post in last post a website that shows you where the stuff is found.
Your SF needs to be tested immediately for chromium; specifically his urine and blood serum!! Positive chromium in urine reveals chronic and immediate poisoning and the blood reveals immediate only. Only a small trace will be present in each speciman if positive and the normal is zero.
Best of luck with this. I continue everyday to educate myself on this. It is all I can think about. I feel so sorry for my Daddy and knowing that he didn't have to leave us if the Doc would have paid attention. And knowing that the Doc is getting away with NO punishment adds salt to the wound.
Please keep us updated on your step father!!
above message ^^
by Clodester - 2011-09-22 10:09:18
Sorry, forgot to sign the message...
Kind regards
Michael
Heavy metal discovery?
by Clodester - 2011-09-22 10:09:26
I am amazed by your tale for so many reasons it's hard to even know where to begin. First off, let me say I am deeply sorry for your loss. I understand how frustrating it is to know information that can save a life, to tell the help professionals and for them to ignore it. Sometimes after all their years of exp with patients, 100,000s of dollars, med school etc it all means nothing if the patient & their family have the answers.
I am 23 and I can relate to a lot of this tale, however I am puzzled as to how one finds out they are allergic to a certain metal in the first place. Heavy metal poisoning will make anybody ill, not just those allergic to it. But how do you find out if its environmental? If its an implanted device thats causing a problem? And do some devices cause problems when others don't?
I first had a PM fitted in 1998 ish - no problems, 2nd in 2003 3rd in 2007 and then now its infected.
After my 2nd, I was on holiday in North France, and I developed nodules/rash started with 1 on my ankle but over a week or so well over 100 all over my body. At first I was told scabies, which sucked as it means baths/smell gunk for all, this didn't work so I was referred to a dermatologist who did a biopsy and then said it was a type of Psoriasis. So UV therapy and steroid cream. This worked to a degree, but things like poor memory developed. I forgot peoples faces and names. I completley forgot whole conversations I had with people etc. I was told it was 'selective teenage hearing'. Chronic nausea and poor eating lead Dr to think I was anorexic. How do you know if its heavy metals?
Again I am so deeply sorry for your loss, but thank you for sharing your story!
Wow!
by JeriLeighL - 2011-09-22 11:09:02
OMG Staci, I called my mom to let her know about this post! My stepfather had his pacemaker put in a year ago and since has been struggling with many symptoms you have described. It started with a skin rash, and was diagnosed as eczema. Since then, he has had many more symptoms which include anemia and his dr said his kidney functions were not normal. What you are describing sounds like him to the T. He has been going to UofM, they even did the UV treatments and steroid cream. They have ran out of ideas, even tried treating for scabies, they are desperate for an answer! They did an allergy test by getting a parts kit from the manufacturer (St. Jude Medical). The dermatologist taped them to his arm for a couple days, it showed no reaction, so they ruled out allergy to the pacemaker. I am now, after reading this, thinking that is what it is! Who manufactured your father's pacemaker? We didn't see Chromium on the list, just titanium, but we are wondering if it's in the titanium. I thank you for sharing your story, SO sorry about your loss.
Just wondering?????
by staci - 2011-09-22 11:09:21
Why the heck would this stuff be used on an implantable device in a human?
MICHAEL
by staci - 2011-09-22 11:09:31
My Dad discovered his allergy to potassium dichromate after he retired. He was a police officer and wore the red wing roper type boots or shoes. After retirement of course he couldn't let those good boots go to waste and he sterted wearing them around the yard and sweating. He had a rash develop on his legs near where the top of the boots touch the calf. He went to a dermatologist and went through skin testing for different allergies and the allergy to the metal-potassium dichromate was discovered then. So I am sure you could have the same type of testing done at most dermatologists office.
While he was in the hospital and continued to deteriate, I asked the docs and nurses about his allergy to the metal and please investigate it with me. 90% of these health care professionals laughed at me and kinda snickered and shrugged their shoulders. I asked a doctor, that I feel is an expert in her field of Internal Medicine, to take my Dad's case on. Finally after 10 days she ordered the test for chromium in his urine and blood and BAM!!! both were positive.
Below is copied and pasted from a dermatologist's website that I read and when I got to pacemaker I knew that was the source of the poisoning.
POTASSIUM DICHROMATE
This patient information on Potassium Dichromate is provided by John L. Meisenheimer, M.D. a board certified Dermatologist and skin care specialist based in Orlando, Florida. This information is not intended as a substitute for the medical advice or treatment of a dermatologist or other physician.
The results from your patch testing showed a positive reaction (contact allergy) to Potassium Dichromate. Your immune system reacts with its defense mechanisms with each exposure of Potassium Dichromate to your skin. It is unknown why certain individuals develop allergic sensitivities. In some it may take repeat exposures over long periods of time before an allergy develops. Once you have become sensitized (allergic) your immune system always "remembers" and you will be Potassium Dichromate sensitive. If you currently have eczema this chemical may be the cause but other factors may play a role as well. The information below will help you avoid this allergen.
Chrome is a metal used in the manufacturing of chrome steel and stainless steel. Other frequent sources of skin contact are concrete cement and leather products.
Where is chemical found?
►Alloys of metallurgy
►Adhesives
►Anticorrosive in antifreeze, oils and paints.
►Automobile
►Bleach
►Blue prints
►Bricks
►Catgut sutures
►Cement
►Ceramics
►Chrome plating
►Chrome steel
►Chromium picolinate
►Copy paper
►Dental implants
►Detergents
►Drywall
►Electroplating
►Electric batteries
►Engraving and lithography
►Eye shadow
►Fireworks
►Floor wax
►Foundries (added to sand for bricks)
►Glue
►Green dyes
►Ink
►Mascara
►Matches
►Metalurgy (alloys)
►Milk testing
►Mortar
►Orthopedic
►Pacemaker wires
►Paint (esp. green, orange, yellow)
►Photography (color developing)
►Pigments
►Plaster
►Pool table felt
►Safety matches
►Shoe polish
►Stainless steel
►Tanning of leather
►Tattoos (Green)
►Textile dyes (military green)
►TV manufacturing
►Vitamin supplements
►Welding
►Wood preservative
Hints on avoiding chemical:
►Always Check product labels and use only ingredient labeled products that do not list this chemical or its synonyms.
►Avoid leather products such as shoes belts, gloves and etc
Vegetables tanned leather is okay.
►Choose products listed only on your personalized contact allergen database, which has been provided to you. Products listed on your contact allergen resource database will be free of Potassium Dichromate and safe to use.
►It may take 2 to 3 weeks of avoiding exposure before improvement of your eruption begins.
►Persistence of eczema in Potassium Dichromate sensitive people can occur for long periods even after exposure has stopped.
Possible Occupational Exposures:
Construction workers
Leather workers
Laboratory Technologists
Printing Machine operators
Metal plating
Machine operators
Photo engraves
Janitors
Other names you may see this chemical listed as:
Chromate
Chrome
Chromite
Chromium
Chromium oxide
Potassium dichromate
Potassium bichromate
© John L. Meisenheimer, M.D. 2004 WWW.OrlandoSkinDoc.com
Thanks Staci
by JeriLeighL - 2011-09-23 11:09:42
Thanks so much. I will pass this on to my mom today. Her name on here is Diane52 if you want to contact her at all. They are going to UofM Monday, I hope they will order the tests asap! She called his primary physician yesterday and they won't order the test, they said they ruled out allergy to the pacemaker. My mom is certain that is it, but she can't get them to order the test. They all say the "other" dr has to order it, as the cardiologist says it's up to dermatology, dermatology says someone else, etc. So frustrating, we just want answers and for him to get better. Will keep you posted.
JeriLeighL
by staci - 2011-09-23 11:09:50
U of M? MI or MS?
The Doc needs to know that the PM, lead wire and electrode are all 3 separate components. Testing was only done on one component.
Your SF immediate needs are to find out if the metals/chromates have leeched out of the device and into his system. Confirmation testing is easy and cheap. Specifically he needs the urine and blood tests for "Chromium". I did find independent labs that will do the testing at the costs of less than $400.00. But if your SF has insurance they can not reimburse without a MD order for the tests.
Skin testing for allergies and such can wait although it is more diagnostic to the specific allergy. But in the mean time SF needs the blood and urine to know if HMT is something he is dealing with.
Yes, I had butted several heads in order to get the tests for my Dad. Actually fired and hired new MDs to get what dad needed and by then it was too late to save him. So you do what you need to do before this thing with your SF progresses.
Jerileigh
by staci - 2011-09-26 07:09:03
He needs allergy testing as well levels. Update us when you can.
UofM
by JeriLeighL - 2011-09-26 09:09:06
It is University of Michigan. They are just leaving to go there now, we are hoping for some answers. It is a dermatologist they are seeing, but my mom will be asking them to test for metal poisoning, we hope they will listen! We just need answers, he is just miserable...
Frustrated
by JeriLeighL - 2011-09-29 09:09:29
Ok, update time. When they went up to University of Michigan, they saw a dermatologist. My parents requested the assortment of blood tests. They did numerous blood tests, a urine test, and 4 biopsies. They called yesterday with the results of the bloodwork... Everything came back normal except slightly elevated kidney function. My mom asked about the metal alergy/poisoning, and they DIDN'T test for it! She wasn't too happy... So now we are back to square 1 and don't know anything and he is still miserable. UGH!!!!! They see the cardiologist I think next week and they will ask him to test for it. We just need an answer. Will post when I know more.
FAILURE TO DIAGNOSE..........
by staci - 2011-09-29 10:09:28
...........I can certainly understand the frustration. Target organs for the metal poisoning are: brain, liver, KIDNEYS, epidermal. It is like hitting your head against a brick wall!! I know times are tight right now for most, but you may want to check out a private lab for the testing....when I checked they were a bit less than $200 each.
Your family is in my sincerest of prayers.
Update...
by JeriLeighL - 2011-09-30 09:09:08
My parents met with the cardiologist yesterday and he doesn't believe the pacemaker is causing all of his symptoms, but was willing to order the tests. Blood and urine were sent to Mayo Clinic yesterday for testing. As bad as it sounds, we are hoping SOMETHING comes back, just so we can have answers and he can start to feel better. They said we won't have any results for 7-10 days, so now we wait...
Test Results are in!
by JeriLeighL - 2011-10-06 12:10:26
Chromium testing came back negative. This is good news, so signs of metal poisoning, but it takes them back to square one. They may be getting a referral to Mayo Clinic, UofM can't seem to figure it out either.
my heart breaks for you
by my4turtles - 2013-01-09 02:01:45
Im so sorry for you, your dad and the rest off your family.. No family or person should have to have this happen. I came across your post because i too have a pacemaker a medtronics and the issue came up with my Dr if im allergic to it.. I just had allergir testing done as i have had issues with it since it was placed.. My allergie testing results are that im allergic to
Potassium Dichromate
Epoxy Resin
Ethylenediamine Dihydrochloride
Nickel Sulfate
Methylchloroisothiazolinone/Methylisothiazolinone
how ever i keep getting told there is none off this in the pacemaker.. but i do wonder still??
I hope you get some answers soon i know that does not bring your dad back but you do deserve answers
my 4 turtles
by staci - 2013-06-04 10:06:06
Sorry for just now getting to see this post you made months ago. What type of issues are/were you having? The doctor that installs the pacemaker also gets "incentives" for installing a brand of pacemakers. Also when a pacemaker is installed you would think that the doc is the person who actually installs it, right? Well before implantation of the pacemaker a sales representative from the manufacturer of the company is contacted and then a time is set up for implantation. The sales rep brings the pacemaker to the facility with them on the day of implantation. The sales rep usually installs the pacemaker and tests the device, after the doc makes the incision and oversees the procedure. The lead wires and electrode(s) are separate pieces. From what I have read it takes about 3 years for the chromium (AKA potassium dichromate) to start leeching out. Medical chrome is "purer" that say a chrome bumper but it is a metal and some folks are more sensitive than others to this metal. The manufacturer of the pacemaker is usually not the manufacturer of the lead wires and electrodes. So really it is anybody's guess what they put in you BUT you certainly can be tested for chromium with a urine, fecal and blood lab testing and see what's going on. Best of luck to you!!
Arsenic
by kingq - 2013-12-26 04:12:00
I have a Medtronics Pacemaker implanted for the past 4 years. Since April of 2013 I have been experiencing cold feet and hands, muscle cramps in toes, feet and legs, ringing in the ears, "pins and needles" sensation in hands and feet, PVC, a general feeling of not being well. Tired, irritable, shortness of breath. I have seen 9 different cardiologists and 2 neurologists and not one of them believes any of my symptoms. One neurologist told me I should see a psychiatrist. I finally went to see a functional medicine doctor who had me get Porphyrin Profile Analysis. The test came back with a high value for Corproporphyrin I/III that indicates a more specific association with the toxic effects of arsenic. I have had everything at work and at home tested and nothing contains arsenic. I will be getting an RBC Elements blood test to check for the heavy metal poisoning. At this point I can only believe that it is my pacemaker or leads that are causing the toxicity.
Thank-you Staci
by Ellen - 2014-08-30 07:08:06
I had a dual lead pacemaker inplanted in 2003 and because the battery was winding down it was replaced with a CRT-Pacemaker on September 2013 along with a third lead. I found your article after looking for what could be causing this rash I have on my legs and feet for two months and it's not going away. I was shocked by what I read and I thank-you so very, very much for putting this out there for people to see. I also went on the website Heavy Metal Poisoning Signs and Symptoms and my husband and I were both shocked again by how many symptoms I have had and doctors have overlooked. At least thanks to you, I am on the right track now. I had a biopsy done of one of the allergy bumps from a dermatologist and it's being tested, I've had a series of blood and urine tests done and they're being tested, and I will be going to a allergy specialist to have chromium and other metals testing done as well. My family doctor will contact my cardiologist if this truly is heavy metal poisoning to see what can be done. I am 100 % pacemaker dependent. I don't want to sue anyone, I just want to feel better. My family doctor said maybe it depends on what different companies make them with, or there is a cover that they can be wrapped in. If it's the leads, I'm in a lot more trouble. I believe these things are still new to a certain point and constantly being tested. My dad passed away in 1973 because they didn't have pacemakers then. But awareness is the key and God bless you Staci. I will let you know what I find out. Thank-you again.
Ellen
by staci - 2014-08-31 12:08:04
Glad you ran across documentation about my Dad.
Glad you are proactive with your health and certainly hoping that you are not allergic to heavy metals. Please update us after you have allergy testing done. The manufacturer of the PM will let you know what metals are in the device. Usually another company is the manufacturer of the lead wires and electrodes. The electrodes are on the distal ends of the leads and they are always metal and not covered with any protection as they are screwed into the heart tissue. Also the electrodes may even be manufactured from a different company as well. So there is more than one source of exposure from the PM implantation. Request your dermatologist to perform the allergy testing for heavy metals ASAP. It sounds like your Docs are circling around each other and you need to pinpoint specifics without further him-hawing around. This is your life and health and not theirs. The metal poisoning comes not only from the PM but the leads and electrodes. Do you get rashes from wearing cheap jewelry, watch bands, the metal snap on pants ect?
I wish you well. Again, please keep us updated. Thanks for taking the time to post and hope all goes well. Praying for you Ellen!
Certain tests done
by Ellen - 2014-10-04 06:10:04
Hi Staci, I'm sorry it has taken so long for me to respond. I had the biopsy done and it came back looking like a possible drug allergy or a virus. All of my blood tests came back negative. This Monday I will make the appointment with the allergy specialist. I have had this rash on my legs and tops of my feet since June 2nd, and it is just now going away. Not completely, but much better than it was. Yes, I am allergic to jewelry, but I never thought about it when I was rushed into the hospital to have a pacemaker put in, or even later. And of course, doctors didn't mention anything, their main concern was trying to save my life. This will be the first time I have ever been to an allergy specialist, so God only knows what they will find. I am wondering what meds your Dad was on. I recently found out I am allergic to Coreg, as I had a scare. My doctor first told me to stop taking it because my blood pressure was too low. Then he told me to start taking it again because I am due to have a echocardiogram done in November and with the new CRT and new lead, they are hoping to find that my heart has gotten stronger. Well, I took the Coreg and I started having the worst time breathing and was gasping for air. I just relaxed all day and 2 days later I was fine. But I will never take it again!!! The Coreg did not cause the rash because I wasn't taking it at the time. I do take Coumadin because of atrial fib, and have red pin dots on my skin, but that's not this rash that has itched worst than poison oak! Oh, and I also found out that Coreg can cause problems with thinking clearly and forgetfulness. It happened to me. I am feeling better now. I will definitely let you know what I find out at the allergy specialist's. And thank-you for your prayers. You and your family are also in my prayers and thoughts as well.
Staci
by Ellen - 2014-10-04 07:10:23
I just wanted to add an extra comment to say I know how you must've felt when the doctors laughed at you. I am so sorry they did that. Last year I had skin cancer, (Basel Cell Carcinoma) on my nose and my dermatologist removed it and had to go pretty deep to get it all. Afterwards, when I went in for my two week check up I told her that it felt like a flap would open and close up inside my nose. Well, her and her assistants all laughed and looked at me like I was crazy. So I went to a specialist and had a CT scan done and sure enough, when they closed my nose up, they bent the inside of my nose causing a flap and a deviated septum. I am a 59 year old menopausal woman and boy did I tell them off! Some doctors are so wonderful and have the best bedside manner, and then there are others that have such an assembly line attitude, and seem so cold and heartless. They forget that without us, they wouldn't have a job.
Frustrated!
by Ellen - 2014-10-15 11:10:11
Hi Staci and everyone,
I am so frustrated. Staci, I made the appointment with the allergy specialist and the earliest they can see me is November 10th, and for metal allergies all they do is patch tests. This is not what we want. I need the exact name to the blood/urine tests so I can tell my family doctor. He will order them for me! Is it called RBC elements blood test? I had routine blood cultures done and all was negative. I don't know what metals my CRT-pacemaker is made of, or the leads, or the electrodes. I can't help but say I don't trust the company that they might not tell me everything I WANT to know. So what is the test to check for ANY metal poisoning of any kind? Please let me know! Thank-you sooo much!
Arsenic
by Ellen - 2014-10-15 12:10:56
I do know that arsenic is in Coumadin and Warfarin. They say it's not enough to harm us. I don't know if I believe that. But there is nothing else I can take because I have heart valve problems. Blood thinners are scary, but a blood clot is scarier. I can't take Warfarin because I have to double the dose compared to Coumadin, and then I break out in blood blisters all over. So I have to take Coumadin, which is very expensive. Warfarin is the generic form.
Hi Staci and everyone!
by Ellen - 2014-11-08 04:11:51
Well, I was getting excited because November 10th was coming up and I got a phone call that the doctor will not be in the state that day and I have to reschedule. The earliest is November 24th! I thought I was going to lose it, but it made absolutely no difference to the person I was talking to. I was more or less told take it or leave it. I've never seen such nastiness in the world of medicine as what's been going on lately. There are so many nurses that I would love to personally B-slap! Oh well...
Ellen
by staci - 2014-11-09 12:11:04
Wow! I missed the other notifications in my email notifying of your updates. But one came through today. So sorry you are getting the runaround. Glad you are proactive in your healthcare. Your PCP can order the testing for chromium and collect a urine, blood and fecal sample to send off to be tested. This is not like regular blood lab work, meaning it takes a couple of weeks to get the results back to your Doc. I had copies of my father's medical information from Ochsner's Hospital in Baton Rouge given to me several weeks after requesting them. When I got to the part of the records involving the pacemaker install the admit sheet clearly shows all of my father's insurance info, demographic info, admit for pacemaker insertion, and in bold under that it shows his allergy to Potassium Dichromate (chromium). Now this information is all on the first sheet of these medical records. All of this information was not only overlooked by the Cardiologist but the Pacemaker Rep and all healthcare staff involved with this stay. The horrible news is that if you are allergic to heavy metals, the surgery to remove the electrodes is not an easy one. The pacemaker is not an easy removal either but is much easier than the lead wires and electrodes. To my understanding if the patient has a known allergy to heavy metals the pacemaker can be wrapped in a plastic to prevent any leeching out of the metal into the patient. But the electrodes are still exposed and the lead wires eventually leech out as well. My father did mention a few times that it felt like a little mouse running across his chest where the wires were located. I know now what was going on but was clueless when he mentioned it. I can say that if you in fact have trouble wearing jewelry ect that your chances of having allergies to metal is 100%. There are also medicines available that work as blood thinners without the troubles one gets from coumadin. Perhaps you can try one of them if your Doc feels it is OK. Some do not even require the monthly blood level checks like the coumadin does. But if you have a-fib, you must stay on something to prevent a clot. Healthcare is very scary now. Technology has advanced so much in the past few years yet some treatments seen barbaric. Then to top it off the non caring healthcare workers rubbing BS in your face when all you want is to regain your health and they may be the very ones taking it away from you. I made a decision to try and grow my food and make my own products to clean house and self. Trying to stay away from GMO products and basically self sustain a bit more everyday. By doing this I hope to stay as far away as I can from needing medical help. But I have a horrible back that keeps my circling the vultures on occasion. Ellen take care and keep us updated on your progress.
Never a Dull Moment!
by Ellen - 2014-12-11 04:12:33
Nothing much at all going on here right now. I went to the allergy specialist and she did a skin tests of all indoor/outdoor and food allergy testing and all was negative. But as far as metal testing, she said we need to contact my cardiologist, so he can contact the maker of my CRT-pacemaker and send the booklet/brochure/manual that comes with the pacemaker that tells all of the metals it's made of. Then the allergy specialist can test for the metals, and not until then. And that's not counting the wires and electrodes. I have had vertigo for four weeks now. I finally saw a neurologist for the first time yesterday. He put me through a series of tests and we found I have a blockage in the center of the middle ear that's causing it. I can't bend over or reach for three days and have to sleep in a chair sitting up for two nights to see if this dislodges the blockage. If not, I have to do this routine of rolling over, hanging my head off the side of the bed, turning to the side, and repeat the above. Like I said, never a dull moment. Thank-you Staci for your most recent message. As soon as I get over the vertigo, I will try to talk my family doctor into doing these tests. What a run around! And yes, I have a bad back too, but we want to move to western PA and get some land so we can plant our own garden, orchard, and berry bushes. Yes, they do seem like a bunch of vultures, all out to get our money but not help us head on with our problems so they can drain us physically, emotionally and financially. I wish you the best too. I was worried about you and was so glad to hear from you. Keep in touch.
Received List of Metals Finally!
by Ellen - 2015-03-26 06:03:48
Hi Stacy and Everyone, I guess you thought I gave up! I had a pacemaker checkup and told the technician about the problem and he got right on it. It took close to two weeks, but he kept me updated and e-mailed the list and called me to make sure I received it. My list is different. Then again, this is a CRT-device, and from a different company, perhaps, and maybe they are realizing problems with chromium? Anyway, I contacted my allergy specialist, and the testing will begin April 13th. They have to order the patch which is specially made, containing 10 different metals to test me with at one time. They are all time sensitive, so I go in the 13th and have the patch placed on my back, wait 72 hours and go back the 15th, have the patch taken off and checked, and then go back again the 16th for a retest. I guess I will have to have this done several times as it seems like a long list. Here it is:
INVIVETM V173
1. Grade 1 Titanium
2. Polyurethane 75D
3. Silicone Rubber
4. Silicone Rubber Adhesive
5. Titanium Dioxide
6. Fluorosilicone Lubricant
ACUITY Steerable IS-1 LV 4555
7. MP35N / Tantalum Core
8. Polyurethane 75D
9. Grade 5 Titanium
10. Platinum/Iridium (90/10)
11. Iridium Oxide
12. Polyurethane 55D
13. Silicone Rubber
14. Silicone lubricious coating
15. Silicone Rubber Adhesive
16. Polyurethane Adhesive
17. Titanium Dioxide
18. Dexamethasone Acetate
FINELINE II 4469 4470
19. Iridium Oxide
20. Silicone Rubber
21. Parylene C
22. MP35N
23. Stainless Steel 316L
24. Platinum/Iridium (90/10)
25. Polyurethane 55D
26. Dexamethasone Acetate
27. Polyethylene Glycol 3350
28. Mannitol, USP Grade
29. Polyurethane Adhesive
30. Silicone Rubber Adhesive
I believe that everyone's list is different, again, depending on the implants and the company. But at least I am on my way to finding out if this is the problem. Thank-you Tracy and everyone, and God bless each and everyone of you.
Chromium
by Ellen - 2015-04-13 11:04:25
Staci and everyone, yes, chromium is listed here, but going under another name. So I finally have my metals patch on and one of them that I'm being tested for is Chromium! This is so confusing to me at times as you can tell! Lol. I can't swear to it but I think Iridium may be the chromium.
Nickel
by Ellen - 2015-05-07 08:05:36
Well, I am finally done all my metal testing, and it shows that I'm only allergic to nickel. Though, now that the rash has gone away, they don't feel the nickel in my pacemaker is bothering me. No one wants to do a blood test to see if I have metal poisoning.
Titanium Allergy - Metals Testing
by 60bpm - 2015-11-06 12:11:32
Hello, I know it has been awhile since most of these posts appeared but wanted to share some info. There is a specific company that does metals testing called the Melisa Foundation. Please research Melisa Testing online. I had a PM implanted in July 08 which began to burn in my chest immediately. To make a long story short, after two failed patch tests (negative result) I insisted the device be removed at my 6 wk checkup. When the EP opened my chest , he could see the PM was totally corroded as were the leads. Prior to this, I had a know reaction to a titanium dental post and a severe nickel allergy but the PM was done in an emergency situation and I was never asked about any metal allergies. Despite negative patch testing, pursue this metals allergy test. It's expensive $700 last I checked but could save much pain and suffering.
Diane
You know you're wired when...
Your license plate reads Pacer4Life.
Member Quotes
To tell you the truth I never even give it a second thought. While growing up it never stopped me from doing anything and to this day my girlfriend or my kids need to remind me that I have one!
Sorry
by Binky - 2011-09-11 06:09:15
So sorry for your loss. Doctors really do need to learn to listen to their patients as they know how they feel. Again sorry for your loss.
Binky