You are normal

• by japresler
• 2013-03-11 02:03:39
• General Posting
• 1292 views
• 1 comments

I couldn't help but be touched by your post. My granddaughter had congenital heart block and was also paced at 3 days old and has had two replacements since then. She also has a comewhat enlarged left ventricle and has been on meds since 5 days old. The first two years were the hardest for my daughter and she also had Ptsd. She was so afraid of everything, checked on the baby 5 times a night, and we were all worried about her too. Aletheia (my granddaughter) is now 8 and a half - and she is doing really well. Her heart enlargement has not gotten worse and she is quite a happy little girl. She has had her struggles - her last battery replacement made her just plain mad - and we let her be. But one day after the surgery (which was done as an outpatient in 4 hours) she was running around the house like a wild indian and all the "mad" was forgotten. As she gets older she is less and less afraid of the battery replacements - and should not have to have another until 11 or 12. Don't be too hard on yourself - and don't get too mad a people who just don't understand what you've gone through. If you have faith in God it helps a lot - and talking to the people on this website helps a lot too. Enjoy your little child - and keep reaching out and asking questions from those who went before you in the same journey. Gramma Joyce