Endless pain?

Hello, everyone! It's been a while since I've written and am curious about whether anyone else has ever experienced what I am feeling right now.

I've had two prior pacemakers try to expel themselves from my body. Usually due to infection, an infection could not be found. A third machine was placed on the same side as the other two but deeper down under the muscle--that was in May, 2006. It's over a year later and the pain I began having after that surgery just won't end. The pain is through my whole shoulder and my entire left arm all the way down to my fingers.

In the last 6 months, I had a bout of pain that was absolutely crazy for several days (different from the usual pain--I felt like I was being shot, stabbed and burned at the same time in the armpit) that suddenly disappeared. The other pain, constantly achy, has persisted. My left arm has started showing some swelling. I've begun having terrible bouts of pain in my chest on that pacer side when I take deeper breaths...

The pacemaker has recently shown some movement again, although it doesn't appear to be trying to escape again. The only options I have from my doctor include either going to a pain specialist or having surgery to extract the entire pacer system only to put in a new pacer system in the other shoulder. I am not crazy about the surgery, but this pain seems endless. Anyone else gone through this?

Thanks,
Dodi


1 Comments

endless pain

by luckyloo - 2007-06-10 09:06:00

dear dodi,

your arm swelling could indicate a blood clot or occlusion of your SVC...the vessel where all your leads run through. a venogram of your SVC and upper extremityies should be performed to check for that.

is your arm colder than the other? is it splotchy in color? if so, you may have RSD otherwise known as CRPS. swelling can also be from RSD. your dr. may have cut or injured a nerve during surgery. this needs to be caught early and pain management dr.'s take care of it. you get target injections and need to be put on a drug like neurontin or lyrica for a while. i have RSD in my rt. arm...not related to my ICD. if you have questions email me and i'll help you any way i can.

take care,
luckyloo

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