Hi Gang, I'm in!

Sorry for the long post. I'll be briefer next time :)

I almost fell off my chair when the doctor in Beijing told me that my heart would pause unpredictably. The longest they managed to capture during a 24-hour Holter monitoring is 6.3 seconds. Imagine the disbelief. I have always conducted myself as an unsung Olympian.

She wanted me hospitalized right away for PM implant. After a combination of logical and illogical thinking, I decided to fly back to US and have it done close to home.

After the completion of the procedure on 8/20 (Thursday) afternoon, at Medical Center of Plano, they kept me in hospital overnight because I developed a mild fever. They gave me antibiotics and I accepted mild doses of pain killer and antibiotics.

I was able to go home on 8/21 afternoon. The pre-release pacemaker diagnostics showed that during the previous night the pulse generator worked 7% for my atrium and 1% for my ventricle. Not too bad: My natural pacer did its job most of the time. I'll see if I can persuade the doctor to get the upper to work even harder on its own.

On 8/22 and 8/23 I have been mostly dealing with the pain at the pocket wound beneath which the pulse generator was placed. I've heard about some returning to work the next day - I wonder how on earth they could focus with almost 50% of the
body paralyzed by the pain - may be by use of tons of pain killers and sleeping pills (for the night). Or they are simply life miracles. My admirations to them for 1) my pain was still there, and 2) the pain killers give me constipation. Ordinary Tylenol or Motrim might be a good idea and so I'll keep that as an option.

Since then the main thing I've been dealing with is the muscle cramp pain (or sore, depending on how you look at it) around the incision site, while standing/walking. I called the doctor's office and the nurse told me it is normal. My countermeasures are 1) Put left hand on stomach, 2) Sit down, and 3) Lie down. So far 3) is the most effective. It might take a few more days for the foreign object to be accepted completely by this body.

So far so good. It remains a mystery how this condition found residence in me. I've no familial history of AV block, although a few on my mom's side (including herself) had high blood presure; I've also been sportive all my life since childhood. I'm approaching 47 and in the past 3 weeks I've been shown what was behind my 10~ years of intermittent blackout episodes and recent 2 occurrences of passing out (last 7/31, and 8/1, both around 5-6am when getting up).

I've been looking for information mostly relating to living with a pacemaker. And I found this PM club a nice place.


12 Comments

Hi!

by dw5281 - 2009-08-27 01:08:50

I had a pacemaker implanted for the same reason as you about 18months ago - though my pauses were longer. I didn't go back to work for 6weeks after my implant so it depends on how you feel & what you do as a job. Just take it easy - I know its a shock when you had no idea of any heart trouble - been there & done that!

HI

by djhman - 2009-08-27 01:08:58

I was not one of those people who returned to work right after getting my pm but I am a nurse and was not allowed to go back. Have to say though I was glad to have a doctor say I couldn't go back because I could not have done it! So you are not alone1

You mention the Medical center of Plano. Is that Plano, Tx?
I ask because I live in Mckinney and just had mine replaced last month at Baylor Heart.

Lori

HI WELCOME

by pete - 2009-08-27 02:08:59

Hi welcome to the club. Theres some real nutters here like me so you can have some real fun and get a wide spectrum of opinions from all the happy go lucky pacers. Cheers Peter

Me too

by ppt - 2009-08-27 06:08:32

It is a shocker! I had multiple difficulties which are finally resolving after 8 months. Am finally back to the gym. Good luck to you! Never give up !

Thank you fellow pacers!

by lamoureternelle - 2009-08-27 08:08:18

It feels like home and good to be part of it.

Lori: Yes it is Plano Texas. I had been there before visiting a friend who had a hip surgery.

Thank you all for the support!

Yan

HI, Also

by pacerpearl - 2009-08-27 11:08:06

I got my ICD in June 2008 at Baylor Garland....it took me a full year to get over the fear of having the device, plus some mild depression. I have finally started to exercise by walking and Curves for Women, and am beginning to feel like myself again! Just give it some time!

pacerpearl

Pain

by ElectricFrank - 2009-08-27 11:08:20

I'm one of those who was back at it right away. In fact I walked a mile the day after the implant and was up to 3 miles in a couple of days. It wasn't because of any macho dealing with pain. I just didn't have much. I replaced the hospitals wimpy sling with a more substantial one made from a 1960's cloth baby diaper, which helped a lot.

The level of pain you are experiencing doesn't sound normal to me. I suspect you may still have some residual infection. My cardiologist gave me a 15 minute IV drip before and and after the surgery to head off any infection. It also helps that mine is implanted right under the skin, which requires a minimum of trauma in making the pocket. I'm 79 and am not sensitive about the appearance. The worst place for placement is under a breast which is common for young women. A lot of sensitive tissue gets disturbed and it can take a while to heal.

best,

frank

Welcome

by Angelie - 2009-08-27 11:08:27

Glad you found us here. I'm hoping we'll be able to answer some of the questions that you might have right now and along the way. It's a learning experience, that's for sure. I've had mine a year, and still feel lost.
This place helps. Don't be afraid to ask questions, and also use the search feature at the top of this website. Type in a keyword, such as "Pain" and it will give you all of the discussions about pain

I am one of the people you mention who was fortunate enough to return to work just a few days afterwards. I had my pacer implanted on a Thursday and was back at work on Monday morning, although I had to have someone drive me and I was very cautious of my lifting restrictions. It was definitely tender, but I have a great tolerance for pain.

I too stumbled upon this site in my quest to learn more about pacemaker living, and it's been a lifesaver for me. Once again welcome,

Angelie

Welcome to the club.

by johng - 2009-08-27 11:08:43

I think your experience is fairly typical of those who have had no major Heart problems prior to having the PM.fitted.

I am also one of the lucky people who had no serious pain or discomfort after the 'procedure'.
Keeping a positive attitude was my problem. I think shock was my main reaction immediately after having the PM. fitted.
For me things improved so rapidly, having a PM. is now almost forgotten.
I regularly log-in to this site because I feel so grateful for the support I found.
I hope you have the same good experience.
Johng

Most sensitive muscle

by lamoureternelle - 2009-08-28 08:08:34

The most sensitive is the inside part of the deltoid that's close to the part of the left pec where the incision was made. The cramp kind of pain will start when I remain in standing position for 15 - 30 minutes, and get worse (big cramp pain if I don't sit down and lay back - I don't need to lie down anymore). This is more so later in the day. Afterwards, I can get up and do stuff again and the cycle retarts.

I joked with wife this morning that my delta-pec has too much muscle to feel the strain, but doesn't have enough to withstand it.

It seems that overall it takes longer for the "cramp" to happen as my 2nd week from PM procedure sets in. Yeah I should just give it time. But I should start that Tai Chi program today!. It has been months since I bought the DVDs.

Pain receding

by lamoureternelle - 2009-08-29 09:08:59

Thank you Frank. What you said should be possible. Good thing is the cramp is happening less. But I'll keep an eye on it.

As far as the Yin-Yang exercise, I find it a good starting point before going back to pumping iron and swimming.

Yan

Pain

by ElectricFrank - 2009-08-29 12:08:07

That almost sounds like it is pressing on a nerve when you are standing. Is it tender if you press on on the area? The pacer is located just under the skin and on top of the pec isn't it. I have heard of men having it put under the pec so it doesn't show so much. With that kind of placement the pacer gets caught between the rib cage and the muscle. There are some rough areas on the pacer where the leads attach that could be digging into a muscle or nerve. If it doesn't clear up in another week or so I would contact the doc and complain.

You should have a heart and give up that Tie Chi thing. Chi doesn't like being tied.

best,

frank

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I have an ICD which is both a pacer/defib. I have no problems with mine and it has saved my life.