Is my pacing off?

Hi all...
So glad to find someone to talk to about the issues that come with having a PM running my heart!
I am a 48 y/o female who has managed to lose 90 lbs over 3 years simply by determination, exercise, sweat & tears. I am an avid spinner, spinning a minimum of 4 days a week and doing cardio/strength on off day. I was diagnosed with AF in 2000 and have undergone 3 ablations; the last being in 12/08 with a successful flutter elimination. I felt GREAT! . While being cleared to have the tummy tuck to remove the excess skin; my cadio MD placed me on a Lifewatch 7 day monitor. Within one hour of having it activiated, they called to ask if I was alright. I was fine - working diligently at my desk! That was followed by two more calls during the day...then 3 calls waking me from a sound sleep in the middle of the night. A day later the MD called, I needed a PM "asap" as my resting HR was 38-40; my sleep; low 30's with 4 second lapses in beats.
I could not understand it..I felt great - I had NONE of the symptoms of brachycardia! I had enough energy to accomplish a 12 hour day without fatigue..I had no problem raising my HR to 155 during spin class and having it return to 90 w/in minutes.
After much questioning of both the MD and the EP; they convinced me I needed a PM. I was the receipent of a St Jude Zephyr dual chamber on 3/25.
While waiting in the cath lab, I think the stress of it all brought on a bout of AF (which I had not had at all since the abalation); the EP placed the PM anyway figuring I would convert back to sinus. Well, I didn't and spent all of the day of surgery and the following day in AF with my heart doing more jumps than I do in class; going from 66-190 simply by walking around the hospital floor. The next day I was taken for a TE (?) test to rule out clotting in the heart (I had not been on warfarin for 1 week at that point). Once I was cleared, I was cardioverted back to normal sinus....but unfortunately, the AF activity in the heart caused the atrial lead to displace. Needless to say, the following day I was back in OR having the lead fixed. After 5 days in the hospital; I came home on Sunday feeling tired & sore - but otherwise OK.
I had my follow up with the device clinic on Thursday. I went home an grabbed the dog to take my 3 mile walk (which I had done Mon/Tues/Weds with no issue). During the walk, I didn't feel quite the same. I felt a little dizzy or anxious on several occassions. I attributed it to needing more rest and went home. Felt pretty good yesterday, went to the gym and walked my 3 miles but noticed I was in a "cold sweat" while walking. Odd for me; especially since the highest my HR got was 110 during the walk.
This morning I woke, drank my decaf and after reading the paper; got up to let the dog out. I took a few steps and got very lightheaded/faint feeling. I sat down and gained my composure and figured it was from not eating. I ate my usual healthy breakfast and felt ok. I went to the gym for my walk this morning....and noticed again; the highest my HR got was 110, but I was in a cold sweat.
I don't think I am pushing the exercise restrictions simply by walking but know I MUST get back to the active life I lead prior to the PM. They all assured me I would feel "even better" after it was in - hard to believe as I felt tremendous prior to having it!
Is is possible that the person (?MD) who did the pacing on Thursday changed something from the settings done in the hospital? She was not a rep from St. Jude (in fact she had 4 different pacer machines in the office) and I am just wondering if something is wrong with my pacing to be giving me these lightheaded & cold sweat spells? Will the proper pacing rid me of these issues and eventually allow me to return to my active lifestyle?

Any info or light that you can shed on this is appreciated. I went from feeling like a million bucks prior to the PM to feeling like a worn dollar bill! Thank you!


3 Comments

Get It Checked...

by chip - 2009-04-04 02:04:11

I would go get it checked out!

If your heart was at 110 your pacemaker was not pacing you.

I would think (but I'm not a doctor) that something else was going on and it’s worth a look.

So many things with the heart could cause light headedness and cold sweats - better safe then sorry.

Problems

by SMITTY - 2009-04-04 10:04:21

Hello Spinnerlady,

It is bad to get old and stupid at the same time. I knew I was old and now I see I have achieved my stupid label without a doubt. Below is a comment I had about your problem but I do my writing off line and I didn't notice that I was posting it in the wrong location. I knew the day to quit was going to get here, but it may be time to consider just that. Anyway, for what its worth---


As Chip said, I also think you should get your PM checked out, especially since there are so many things that can cause symptoms like yours.

That is not to say the person doing the last checks did not change something, but there is hardly anyway for you to find out unless you can get a copy of the last two printout that were made of the checkups. For that very reason I get copies of the printouts made at each checkup I have. Sometimes getting that copy may not be the easiest thing you will do, but if you insist hard enough they will usually come through. Or you can try the ruse I have used a time or two and that is I'm going out of town and I want a copy of the information to carry with me in the event I need help that involves my heart or PM because I want to be sure whoever knows what my settings are.

Be all that as it may, the only way you can find out what is going on, be it your PM or something else and considering the wild ride you have had recently, I hope you can see the Dr soon.

Good luck,

Smitty

Common problem

by ElectricFrank - 2009-04-05 12:04:15

You are likely suffering from being in good shape. Most cardiologists/doctors are not experienced in dealing with a younger person in good condition. They see your low resting HR and assume you are having clinical bradycardia. The only indication at all for a pacemaker in your case is the 4 second pauses. The question here is whether the pause is caused by lack of atrial beats or by an interruption of AV conduction. In either case the pacemaker can be programmed to fill in the the missing beats.

My guess is that they have programmed the pacer to "take over your heart" to "treat" the slow resting HR which is normal for you. Your inability to get your HR over 110 is an indication that something is wrong.

I had a similar thing a year ago. My pacer was intermittently losing capture of my ventricles and I was skipping 4 beats in a row. I went into ER to get it checked and every time their monitor sensed the skipped beats they would come running into my cubical with the defib only to find me wide awake and happy. The cardiologist wanted to do all sorts of invasive testing and I turned them all down. Instead I insisted on seeing the Medtronics rep to check my pacing voltage threshold. Next day they turned the voltage up and no more problem. A month later we turned it back down. Apparently I had a virus or something that affected the threshold.

Bottom line is that if I hadn't been very firm I likely would have had one of their procedures mess something up unnecessarily. Instead I'm back at it again.

good luck,

frank

You know you're wired when...

You run like the bionic woman.

Member Quotes

Try to concentrate on how you’re able to be active again and feel normal, rather than on having a machine stuck in your body.