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Most Recent Messages in ICDs
9 Days Away from ICD
I discovered this forum a week or so ago and have really enjoyed the good information and insights. Here's the deal:. I'm 61 years old,. Ejection Fraction of 16, severly dialated left ventricle, global hypokinesis, moderately dialated left atrium. On the positive side, I have absolutely zero arterial plaque, no edema and no CHF. I am 40 to 50 lbs overweigt but I'm working on that. I am scheduled for a n ICD implant on 10/25.
I am right in the ce...
Medical costs
I have recently posted on this site for the first time. I have received some fabulous advice and information. I enjoy reading your quotes which appear at the bottom of the page. But today's quote mentioned an ICD mortgage. I'm from England so NO medical costs but am I correct in thinking that you must pay for this life saving treatment in USA?
So frightened
My pre assessment is on 06 oct 2017 with CRTD implant booked for Nov 1st. I am really not coping with the thought of going through this. I have two arguments going on in my head... have it, it will save your life. Then.....I feel too well to be as ill as they say I am. Perhaps they have mixed up my medical notes with someone else's! I guess this is denial but it sure feels real.
I am a "healthy" 65 year old "life and soul of the party" type of gal. They tell...
When an ICD is EOL. When to replace?
A friend of a friend is very upset because he has been told his defibrillator is near its end of service. His understanding is that because of insurance issues, it has to quit, be dead, be totally out o power, before it can be replaced. All he has been told is to call the doctor's office when it buzzes and it will be replaced immediately. Middle of the night? Yes, call. On a weekend? Yes, call.
His fear, of course, is that he will need it between the time i...
just wondering
Hi i have had my icd since august 2016
every now again i get these little nips around the icd. Is this the icd working.
They arnt painful,
thankyou for your advice
VERY Inappropriate Shocks
- by general3651@gmail.com
- 2017-09-15 16:05:23
- ICDs
- 1926 views
- 3 comments
Hello. I had a 3 lead pacer installed August 2014. Was decided November 2016 that I needed an ICD upgrade due to low EF. August 2017 I received 33 inappropriate shocks in a 2 hour period. ER was unable to stop shocks with the magnet, it took the St. Jude Rep. and her computer to stop the shocks. It was brutal. I kept being aske if I had been in an accident or had I fallen. I had not. They just could not understand how this happened. My doctor took the St. Jude out the next day, and repla...
Good Knowledge Site: http://asktheicd.com/
Seems like a great site that answers many questions
Hope it helps!
Life Vest
- by Buckeye Guy
- 2017-09-12 01:39:09
- ICDs
- 2959 views
- 6 comments
I had a cardioversion about two weeks ago but seems like it didn't help and now having issues with VT. The Dr has mentioned in the past about an upgrade to an ICD (third device in 5 years) but had an MRI today and seems to be talk of Life Vest. Not really liking this option and as most reviews on it are less than "good".
Does anyone have any experience with it, good or bad?
ICD defibrillator unit
- by Kellmell13
- 2017-09-07 11:44:19
- ICDs
- 1832 views
- 6 comments
Hello,
My name is Kelly. Last year I had a duel chamber pacemaker installed because my heart was beating too slow.
Now a year later, I have VT. They did an angiogram and everything seems fine with the plumbing. Now I need to have an EPS done.
If I end up needing an ICD defibrillator unit along with my pacemaker, do they just replace the unit itself with a combination ICD and pacemaker? Or do they need to redo the leads too? Last year the first att...
Hello
- by wiredgrammie
- 2017-09-05 02:05:38
- ICDs
- 1601 views
- 2 comments
I am new to the club and will be getting my pacemaker/defibrillator (not good with all the terms yet...ICD) soon.
Heart disease came on very quickly and im am searching for resources and trying to learn as much as i can. I finding the hospitals/doctors do not have meal plans...i have ideas and look them up but have not found good menus??
any info you can share on what to prepare for or expect would be appreciated!!
So happy i found this club!!
Deep itch and pinching at site of ICD
It has been just over 4 months since my ICD was implanted. There was some discomfort after but now it seems to be getting worse. It doesn't wake me up in the night but when I wake up it does pinch and cause a deep itch. During the day It feels better if I walk around holding it in place and use ice. I have contacted the pacemaker clinic that provides my follow up and they tell me that unless it is hot to touch and/or swollen it is normal. It isn't hot or swollen, just terribly u...
Shifting
Hello! Im one week after my ICD (single lead wire). I'm just struggling when sleeping and moving around. I'm 31, young busty lady and I am bouncing back quick as far as recovery goes but I find when I lay down or move around the device shifts too, most times it is very uncomfortable. Will it ever affix to one spot or will it always be like this?
Hoping for some advice from others with a similar issue. Thanks!
short vt runs and icd.....scared
- by Lisamaruna
- 2017-07-07 20:40:49
- ICDs
- 1806 views
- 2 comments
Hello so I have had my ICD for a yar and a half and am currently on a heart transplant list. My heart has been bugging me latley . A few weeks ago I felt really crappy and they did a device check and it was a run of a-fibb of about 6 seconds. This morning I woke up feeling funny and called and they did a device check and it was a 9 second run of vt. I know that is not much but they did up one of my meds (metropolol) .
I am just scared this is all st...
iICD REPLACEMENT
GOING IN FOR MY 4TH ICD JULY 10 . FEELING NOT UP TO PAR ..NO ENERGY JUST A COUCH POTATO ! IS THIS NORMAL
ST JUDE ICD
MY LAST ICD WAS PUT IN JAN 2011 DUE FOR NEW ONE JULY 10. HAVE THERE BEEN ANY CHANGES TO IT ?
Cardioversion
Hi Everyone,
My Cardiologist has recommended cardioversion to regulate my atrial fibrillation.
My main concerns are, will this procedure affect my ICD/Pacemaker function, will the cardioversion work and/or would it make it even worse??
My General Practitioner doesn't really know!!
It would be great to have your feedback.
Many thanks, Ozzie
Work as a Distribution Linesman
I am new to the site, and I am greatful I have found what seems ot be a great support system. A little about me first. I am 31, from Australia and in Feb this year (2017) I went into cardiac arrest at football training. CPR was commenced imediately, and an external De-Fib used which took 9 shocks to get my heart going again. I have had an ICD installed and my recovery has been great.
I am work as an electrical distribution linesman (powerlines which deliver electricity to houses). So my...
Who is sorry they got the CRT-D?
- by lindajeschke@hotmail.com
- 2017-05-23 14:08:48
- ICDs
- 2599 views
- 12 comments
Just wondering who is worse and wish they NEVER had a CRT-D? The 66% success rate is terrible.
I have complete LBBB, EF of 10%.(was 20% in September 2016) ...never told I had Heart Failure until last month when I was sent to a HF Clinic. Just told I had a "weak heart." by local cardiologist for over 20 years.
Can't take Beta Blockers or Spironolactone & many others.
Doing OK on Lisinopril and Lasix (was taken off Maxide after 39...
Swimming friendly EP
Can anyone recommend a distance swimming-friendly electrophysiologist in the UK?
Thanks in anticipation!
You know you're wired when...
You have a 25 year mortgage on your device.
Member Quotes
Without this little machine, we would not be here.